Archive for August, 2010

13
Aug
10

sulfites in anesthesia. fact.


Attention K-Mart shoppers:  Hans has left the building.  Or as my friend Elliot stated on Facebook the other day, “look ma…no Hans!”

Yesterday I went under the knife and had a disgusting neck mass scooped out like a melon ball.  YAY ME!

It was a class act affair and Skokie Hospital totally rocks.  Very impressed with the whole scene.  I was worried of course, being a flamboyantly out of control drama queen, but I was mostly worried about the anesthesia and what affects it would have on me.  Specifically because I have heard that there are sulfites in a lot of them.  So when it came time to get to pre-op, I was chomping at the bit to have the consult with the drug peeps.  I told them about my allergy.  Skokie is a big teaching hospital so the resident who was assisting with the anesthesia (thank goodness for the ctrl+V button on my keyboard, that word is hard to spell) has never heard of it.  I felt all very puffed up and proud like a peacock to be a a part of her learning something new that day.  And I loved her because she said that even though my pre-op sarcastic wit was adorable and funny, she thought I needed a “little something” to calm me down.  I love her.  They were very cautious and did a lot of research in order to find the correct drug to administer.

Unfortunately, they had to wake me up on the middle of my surgery because apparently I was acting like Kung Fu Panda.  I think they were being nice but they did say that it was a good thing my hands were tied down so I couldn’t follow through on my karate chops.  It seems I was “slightly agitated” and *disinhibited during the beginning of the surgery.  And as my anesthesiologist/girlfriend stated, ” Well, Mrs. Moran, I think it’s just a good thing you have a kind and patient surgeon.”  Holy Hell, what did I DO?  After that I was in this strange state of half alive, have out of it.  I didn’t feel pain, but I could feel the tugging of the sewing.  I could hear conversations about someone’s kid playing little league and someone singing Cream’s Sunshine of your love.  A song I will always now equate to someone stabbing me in my neck, thankyouverymuch.  I also heard the resident who was sewing me up asking the doctor (after he said, oops) “um, Doc? how do I fix this?”  And the Surgeon saying..”Uh, it’ll be fine.  Just leave it.  Throw some tape on it. ”   HAYYYYY-YAH!

I KARATE CHOP YOU!

Seriously, the team was incredible and I would recommend my surgeon and that hospital anyone.

About the drugs.  When I came to my senses, I tried to ask one of my look alike nurses, Peg, June, ChristyMargaret,joanblahblahdrugsthatmakemehappyhmmmmmm

Anyway.  I asked for the list of meds that they administered to me and wouldn’t you know… not one of those 15 blurry nurses could give me an answer. I am going to call medical records and get it from them.  I think it’s really important to know for future reference.

I do know that when I recently had a kidney infection, before I found out about my allergy, my first antibiotic was not working so my old doctor gave me one called Bactrim.  It was BAD.  I reacted horribly to it, like I do with z-pac.  Of course I was getting the severest of the symptoms that I usually get when running into sulfites but I didn’t know it yet.  When I told my dr, he said to make sure to add it to my medicine allergy list.  When I was pre-op yesterday and telling one of the nirses about the sulfite allergy and my bactrim sensitivity, she said that it is really high in sulfites and I was inpressed that she knew that.

Here is a link to some poor victims who share bad bactrim tales  http://www.medications.com/effect/view/22714

THE DOLLS, THE PILLS, THE BOOZE

Well, this isn’t about booze, but I couldn’t resist the movie quote.  And you know how I feel about booze.

Other drugs to watch out for…

Tylenol with Codeine a.k.a Tynenol 3 or 4.   Here are the ingredients:

TYLENOL® with Codeine No. 3 contains powdered cellulose, magnesium stearate, sodium metabisulfite†, pregelatinized starch (corn), and modified starch (corn).

TYLENOL® with Codeine No. 4 contains powdered cellulose, magnesium stearate, sodium metabisulfite†, pregelatinized starch (corn), and corn starch

Whoops-a-daisy..don’t take those!

Here is another list that I found of Medications with sulfites       source

Bronchodilator solutions for asthma

  • Adrenalin chloride 1:1000 concentration
  • Bronkosol
  • Isuprel hydrochloride solution

Topical eye drops

  • Pred-Mild
  • Pred-Forte
  • Sulfacetamide
  • Prednisol
  • dexamethasone)

Injectable medications

  • Amikacin
  • Betamethasone phosphate (Celestone)
  • Chloropromazine (Thorazine)
  • Dexamethasone phosphate (Decadron)
  • Dopamine
  • Epinephrine (Adrenaline, Ana-Kit, Epi-Pen)
  • Garamycin
  • Gentamycin
  • Isoetharine HCl
  • Isoproterenol (injectable)
  • Hydrocortisone (injectable)
  • Lidocaine with epinephrine (Xylocaine)
  • Meperidine (Demerol)
  • Metarminol
  • Norepinephrine (Levophed)
  • Procaine (Novocaine)
  • Prochloroperazine (Compazine)
  • Promethazine (Phenergan)
  • Solutions for total parenteral nutrition and dialysis
  • Tobramycin

Finally, I have been wanting to talk to Dr. Mike and perhaps get a script for an epi pen, not really for my sulfite allergies, but for something else.  My reactions to apples and peaches, even organic and peeled, seem to be getting worse.  I had heard that there were sulfites in Epi pens.  They are indeed OK for us to you…here is documentation

http://allergies.about.com/od/fa1/f/sulfiteepipen.htm

So that’s all I have for now.  The Hans crater is sore and I am getting pooped out.  Next blog coming later is about where to find good organic meats and how I learned some disturbing news regarding sulfite spraying on dole bananas and some other fruits that I thought were safe.

Over and out, captain.

P.S.

*disinhibited definition, according to Wikipedia

Disinhibition is a term in psychology used to describe a lack of restraint manifested in several ways, including disregard for social conventions, impulsivity, and poor risk assessment. Disinhibition affects motor, instinctual, emotional, cognitive and perceptual aspects with signs and symptoms similar to the diagnostic criteria for mania. Hypersexuality, hyperphagia, and aggressive outbursts are indicative of disinhibited instinctual drives.[1]

Let’s see a round of hands for everyone who agrees that I hope I never see any of those people who were in that room ever again.  Especially if my disinhibition turned hypersexual in any manner.

P.S.S.

I love you.  Oooh Oooh Oooh.
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08
Aug
10

NO-HO COCONUTS!


Hello lovelies…

This is a friendly service reminder to READ ALL LABELS.  Even on things you think are ok.  I love those Odwalla juices and can have most of them, if they don’t have garlic.  I picked up a gallon of the Mango Smoothie and pretty much downed the whole thing last Weds.  By 2am, I elevated in my bed screaming in excruciating pain.  My left shoulder was horribly swollen and I couldn’t move it an inch without yelping and the fingertips on my right hand were swollen, hot, inflamed and itchy.   HELLO.  Looked on the label of the juice and there amid all the good stuff I could eat was the word, “COCONUT.”  Eek.

I am finally feeling better, it took a good three days to get it out of my system but it was a bit traumatizing.  I think now that I have cleaned my body of everything,  my reactions are a lot stronger.  That, or the have jsut really excalated now.  Anyway, I am keeping a list of all the big allergens and I suggest all you sufferers do the same.

Hans, The Neck Mass

So I have this bump on my neck and I have had it for about 8 months.  I have named him “Hans” It’s getting bigger so a nice surgeon is going to knock me out in a few days to get it the hell out of my body.  Is it a cyst, a mass, a wonky node and tumor that is slowly crawling up in my brain and making me act blonder than I am?  Who knows…we will see.  I just don’t want to look at it.  I had a friend who used to have fatty deposit things removed from his body and he would specifically ask the doctor to put them in a little vial so he could take them home and gross me out.  I love that guy.  I am sure everything will be fine.  HOWEVER,   If one more person tells me not to freak out and everything will be fine, I am going to smack them and tell them that when they have large bump in the back of their neck, then can do the same.  Let me freak out.  It’s my nature.  So wish me luck on my little surgical adventure and let’s hope I get some good drugs for the pain.  YEEE HHAAAAAA!

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04
Aug
10

The Sulfite Allergy CAN List


(Please note that these are all things that I can tolerate.  Yo may have different severities to things.  This is just a guideline and these items seem to work for me.  THIS LIST IS A WORK IN PROGRESS AND WILL CHANGE so please check back periodically.)

When I was looking online and trying to find ideas of things I can eat, there was nothing out there.  So here is a sample list of things that I can eat and a daily food meal suggestions. Hope this helps and I welcome your comments, input and/or hate mail.

BREAKFAST ITEMS

Greek plain yogurt with fresh fruit mixed in and a dab of honey

natural ovens toasted with butter and honey

Kashi 7 whole grain honey puffs

smoothies made with yogurt and fresh fruit

SNACKS

kettle One Sea Salt chips

Isola Thin Crustinetti’s (found at Whole Paycheck.  Basically mini breadsticks)

Lara Bars:  Read the ingredients VERY carefully.  If you can have nuts, these are fantastic.  I personally cannot but I have a separate nut allergy so  you may be fine with this.)

DAIRY

Greek yogurt – plain

Plain yogurt

cream and half and half

*Milk – this is one of those things that people can or cannot tolerate.  Make sure you find out of you can do this.   Many people actually drink non-fortified clean milk that you can get straight from farmers.

*Goat cheese  – seriously?  I don’t know if this makes me sick or not.  I feel like it might.  I am going to try it one more time today and see what happens.   I had some yesterday and my thumb is swollen like little Jack Horner.

*Fresh Mozz – YES!  Works for me!  And it melts…..yum…..UPDATE.  Yeah, no.  Can’t do mozz…I think it makes me really sick.  But I can have

FETA!!!  I get the athos brand and it melts so it’s good on everything…my favorite is melted a little on top of pasta

*Butter – I love the irish butter you can get at Trader Joe’s and so do the kids

MEAT

(I try to get everything organic and mostly from places like Whole Paycheck.  And I clean the heck out of it and dry it.  Let me also add that I was recently told that the little pads that are under chicken and meat are actually totally comprised up sulfites.  I haven’t been able to find actual documentation for that but I am working on it, so check back.)

Chicken

Turkey

Steak

Most fish (no crustaceans unless fresh right from the sea)

Beef

SOUPS

I made a ton of homemade soup now.  I make my own broth and store it.

I do cream based soups like cream of asparagus, broccoli, green pepper and I am about to venture into some other soups. My problem is that I REALLY miss the onion flavor but it’s something you have to get used to….and you just have to get used t making your own broth….

FRUIT AND VEGGIES

*Tomatoes (Like Parmesan cheese, tomatoes have a naturally high content of MSG so some people cannot tolerate it.)

Celery, carrots, all lettuce including kale and collard greens, green/red/yellow peppers, all berries, beans, eggplant, cucumber, zucchini, avocados, melons, bananas, *apples and *peaches(I seem to have  a sensitivity and not sure if it is from the sulfites that are sprayed once on the crops at the beginning of harvest on even organic fruits), Lemon, lime, mangoes, kiwi

OTHER

honey

olive, canola and sunflower oil

fresh pepper

sea salt

fresh herbs and organic spices (no spice or seasoning mixes)

tea with unbleached only bags

fresh squeezed orange juice

BOOZE GLORIOUS BOOZE

Sierra Nevada beer (the original blend)

Clear good tequila like Patron or1800 Silver  (mix it with fresh OJ and fresh mint, YUM)

Bonterra Organic Chardonnay  (I can do this, but only with the twisty top from the organic section at The Jewel or Trader Joe’s and Whole Paycheck)  NOT ALL can tolerate this.  Thank the Heavens that big momma can.

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04
Aug
10

MISS YOU


Hello gorgeous.

I have not been around…I know…I have decided that I am simply to busy having an awesome summer with the kids to be on the computer.  Sure, I have no money, no clients, no gigs, and therefore no money to buy the high maintenance food I eat, but I have a great tan.

I am about to post THE LIST.  The list of all lists…things that I can eat.  This you might be able to eat.  This DOES NOT MEAN that you can eat what I can eat.  This is just a guideline for people who share this allergy and are feeling like me, only seeing lists of things you CANNOT eat. I will post that list in a minute, and again, feel free to add comments, question me, tell me if my ass looks fat in this outfit, etc.

Things have been going okay with the new diet regimen. And when I say diet, it’s not really a diet. I have actually stopped losing weight because I have found some new cheats that are fattening like…5 ingredient really yummy french bread with irish butter. Not good. So I need to get back to the kale circuit and eat more of those yummy fresh fruits and veggies while they are in season and before I have to buy all of them at Whole Paycheck for a small fortune.

I recently had a visit with Dr. Mike and whined about hard hard everything is. He assured me that I WILL get over this… and I will be able to one day just do this all effortlessly and I believe him because my Yoda he is.
I think lately I feel really just pissed that I can’t eat out. I get angry watching everyone around me eat. I get really frustrated that I will never be able to go into a nice Mexican restaurant and order a normal dish and a ‘rita. So I am avoiding. I do that well. And I will have my own set of worry when the holidays come and there will be a virtual plethora of slutty dips paraded in front of me that I can’t dip my chip in.

But things are getting slowly more adaptable. I am getting into a routine of making a whole chicken, (Roasting, boiling or crockpot, I change it up) every Monday to make broth and eat the meat all weak. I need to actually go out and buy some jars to store the broth. Then I make a nice soup a freeze it. My freezer is stockpiling with little green soup-filled baggies. Like alien breast milk.

The other day, I made the DISASTEROUS mistake of watching Fast Food Nation. Now only was it disturbing and grotesque, it was also an interesting insight to the sad practice of how illegal immigrants are basically scooped up at the border and forced into labor. It was disgusting all around. And now, I am freaking out about meat. I love Facebook because I do one little post about it and 47 people have immediately a lot to add. I am going to look into some local places where I can buy meat in bulk. I am not apposed to eating meat. It’s the evolution of life. It’s the foul sanitary conditions, horrible labor practices and inhumane killing that is making me vomit in my mouth. Thank goodness I can’t eat a Mickey D cheeseburger anymore.
I will post information regarding local meat sources. Oh dear, I think this needs it’s own separate blog.

Lastly, I am having a Pampered Chef party as an excuse to get all my friends drunk on Arbor Mist and buy muffin tins.  I want to get a few things I need for the kitchen, but mostly I want people to come over to my house and get plowed with me.  If you want to come along, let me know, sugar.  You are invited.

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Heather Moran

Crazed sulfite-free woman.

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