Archive for November, 2010

19
Nov
10

Now what.


I have been gone awhile….

HEEEEELLLLLLOOOOOOOOOO!!!  Long time, no blog!

Insert old lady health rant here:

I have been feeling really under the weather. A few weeks ago I started to have more trouble getting around.  My feet had been giving me a lot of pain and the shoulders and hands but then my knees started to get really bad.  I was literally having a hard time walking.  Going up and down the stairs was brutal.  It turned a bit scary.  My mom came over and was like, WTF.  I hadn’t realized how horrible it looked to people who haven’t seen me because I had slowly gotten worse over the course of the month.  I knew that this was something other than my sulfite allergy because I had pretty much cut my eating down to chicken, steak, mashed potatoes and one or two veggies.  But I was getting worse by the day.  I have something called Raynaud’s Syndrome where I lose circulation in fingers on both hands.  When they get cold, they look like dead hooker hands.  Inappropriate?   Perhaps.  But true.  It has really turned aggressive though recently, even in my house and I have been walking around cleaning with mittens.  Perfect for dusting.  I got a new script for it, that seems to help a bit.  At least in the house. LOL  Right now I have one finger that is terminally freezing and I actually think it’s rather quirky and adorable.  And will come in handy to cool off a cocktail if I just stick my finger in there.    But yes, so other things were just getting worse, really fast.  I was having trouble putting on Cracker’s tights, making the kids lunches, brushing my hair, even driving my car was almost impossible!  What a crazy thing!

I hobbled myself over to a great new rheumatologist and she was actually quite amazing.  She listened to me and told me that she will not stop until we know what is making me sick and help me feel better.  WOW!  I feel like her and Dr. Unger are like the super heroes of medicine in my life.  Wonder-twin power activate…shape of….Rock star doctors!

Anyhoo, she checked me all out and took some xrays.  She said that everything preliminarily pointed to lupus or Rheumatoid Arthritis but she wanted to do a bunch of blood tests.  Based on some other tests that Dr. Mike had taken, she was able to rule out Lupus.

So the other night, while I was out teaching voice lessons, Dr. Rockstar I will call her (cause she is) called Thor and broke the news that I tested “very positive” for Rheumatoid Arthritis.   I have to say that I was upset about it but I felt almost a sense of relief to know what was wrong with me.  I knew that there was something beyond the food allergy.  I just knew it.

I remember about  year ago, Thor and I took the kids to the Museum of Science and Industry and my shoulder was killing me.  I mean really painful.  So I called my old doctor, who btw, was a very attractive man who looks like a hot Bill Clinton and very cool, but didn’t really seem to want to help me out very much.  I called and told Dr. Clinton about my shoulder.  I said that it hurt when I raised my arm.  He said, “then don’t raise your arm.”  Mm hmm. And then he tried to give me anti-depressants.  HRUMPH.

So yeah, I guess there is a sense of relief that Dr. Mike found my crazy food allergy and Dr. Rockstar found this other thing.  I know that I have a lot going on right now but I think that I am totally on course now to feeling so much better.  I am going to continue to eat as pure as I can and even might try some water aerobics.  (No video allowed.) I started a new med yesterday for the RA and I already feel incredibly better.  I mean, REALLY better.  Like I can probably run up and down the stairs if I want 😉  If I want.  But I probably won’t want to.  Because I am a lazy ass.

I don’t know much about RA.  I didn’t do much research on any particular auto-immune disease because I didn’t know what I had and I didn’t want to freak myself out.  But I have to share this one story with you…

Yesterday Thor and I were lounging in our bedroom talking about the diagnosis and he had spent some time during the day researching on the internet.  I hadn’t really done that yet, cause I am kind of skiddish and most definitely an alarmist.  So we started to Google like big fat dorks next to each other on our respective Android smart phones and I search for “Rheumatoid Arthritis.”  I see a bunch of links and so I just randomly pick one and hit enter.

This is the first image I pull up that takes up the entire screen of my phone:

GGGGGGGGGAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHH

Of COURSE that is the very first image I see when I am like, hmm…ok, let’s find out about what I have….hmmm….ok…….AAAGGGGHHHHHHHHHHHHHHHHHH

It’s not funny, that poor woman. But Thor and I laugh through pain and this was definitely a funny Heather moment and I couldn’t love Thor anymore than that moment, when he turned to me with laughing tears in his eyes and said, “Better blog that, honey.”

So here we are.  I have to continue to dodge the steroid bullet because I am supposed to start them and be on them for 3 months.  Heather+prednisone=

I know I have to do it. I know it will protect my joints.  I know it’s inevitable.  But I can’t sleep or act like a normal human being on it, so for now, I will blissfully ignore the inevitable.  “Oh, Look at that bird over there!!!!!”  (Heather slyly sneaks out stage left.)

On The Food Front

I am sick of cooking.

I am really bad at it.  It’s not getting better.  I am sick of going to restaurants and staring at my family.  I don’t like them when they are eating.  Last night I was shaking some of that pink antibiotic, stinky, icky crap that Bambi needs for a gum infection and the top wasn’t on and it flew all over the kitchen. Everyone was so un-phased and used to liquids/foods/other cooking objects flying around the kitchen when I am in it.  It was very business-as-usual and complacent as hell and I was mildly annoyed.

I am looking forward to a tequila and orange juice cocktail tonight.  That will be a highlight.

I also have some broth that I made this week that I have to haphazardly turn into a soup.  So hopefully the tequila will help me with that.

This weekend, I am planning what I am going to bring to my cousins for Thanksgiving…they are having it catered so it should be a sulfite orgy on the table.  Will sneak in covert clean food *wink*wink*

What is everyone else doing for the holiday meal?  please share!

Cheers!  It’s Friday!  This has been fun blogging, I missed it. I am thankful to have the use of my digits back and I love you all, my little Sulfite-nots.  Happy Weekend and a Blessed Thanksgiving!




Heather Moran

Crazed sulfite-free woman.

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