Archive for February, 2011

19
Feb
11

Goal of the day: Do not stroke out.


Oh yeah.
So I go on Enbrel and my RA is amazingly in remission.
Dude. I RAN up the stairs the other day.
Thor said, “Heather. You just ran up the stairs.”

OHMIGOD!
Cool!

But for some wack-a-doo reason, my blood pressure is freaking out. AlrightalrightalRIGHT.  STOP LOOKING AT ME LIKE THAT.  Ok.  I have been cheating, people. A teeeeeeeeny bit.  I admit it. I thought I would test out the waters since I have been on the new meds.  I got a little cocky and decided to shove some ion SO2−3 in my mouth.  See what happens.


Funny.  It didn’t look like this in the grilled cheese sandwich I shoved in my mouth.

 

I think all this evil sulfite compound is doing is shaving important hours off of my life. I called my loving, adorable and very talented Dr.Mike (and Facebooked him.  Oops. He might just kill me at my appointment on Monday. Stay tuned for the results.) and he is going to fix me up but good.
I also talked to my Rheumy nurse to rule out this as a side effect of Enbrel and she said no but she was concerned about my BP (it’s hovering constantly around 160/107) but she told me to just take it easy this weekend…“lie in a darkened room and relax all weekend until you can get in to see Dr. Mike.”)
Oh, that’s rich. HA.  HA HA.  Stop….stop making me laugh…snorting….my rock hard abs hurt from laughing so hard….milk spittake ensues.
There is no resting in a dark room.  Not over here at the residence of  666 Chaos Lane, in CrazyHeatherville, USA.
I am a mother of three wild children, a vocal recital to run today…overnight guests coming and and a lacrosse game, just to name a couple of things on my dance card for the next 24 hours.
DAMN YOU, Regal Theatre movie pretzel with a side of cheese!
I CURSE YOU, baloney sandwich on Wonder Bread white. (Oh, hot dayum, that tasted good.)

So I am medicating myself with advil and much later, in my darkened room, a glass or 2 of wine.

*********************************

Is my BP high from the food?

We will see. I am going cold turkey and see if it will come down.  Is my body just really pissed at me because I am taking Enbrel and it won’t let me swell?  So now it like, ok bitch ,that’s how you want to play it….ZAP!  (blood pressure spike HERE!  and HERE!….and just when you think it’s going down to normal…HERE!)

I do have a really swollen lymph node in the armpit of my….armpit….lovely, no?  And it really hurts.  I feel like crap so I might just have some little bug. Enbrel basically kills my immune system and kids have been sick all around me this week.   Seriously.  Like one kid at a Valentines party sneezed right on me.  It was all over my arm.  Gag.  That, and Alpha sneezed on the butter the other day.  I mean it.  For reals.

Wish me luck, wish me willpower, wish me to live through the day…happy weekend everyone!

04
Feb
11

Pump Fake (quite literally)


Today was my training with Thor for my first Embrel injection.

What we learned today:  I am a suckass wimp.

And so is Thor.

I had to go in to get my first shot shot today of this new biologic drug that is supposed to not only make me feel better, but basically make me symptom-free.  Which is just about perfect timing as yesterday I was calling friends to see if anyone had a cane lying around that I could borrow to walk around.  Jeez, Louise.

So we get there and because insurance is so annoying, they had to give me a sample.  They get me all prepped, (Thor was supposed to give it to me but he “assured” me that it was probably best and easier if I do it a.k.a.  Thor=pussy.)  Alright, so he’s not a pussy, he is very sweet,.  I am just trying to make myself  look better.

So I have to drop my pants

and get up on the table with Thor and Dr. Rheumy and Nurse Nice.  (She is very nice and helpful.)  Dropping trough in front of strangers is never fun.  And I wished that I hadn’t worn “that” underwear.

My rheumy is french and rather, well, hot.  And she is a very, very smart blonde and I have a feeling she can also really cook.  So she is trying to instruct me how to do it and I have to take the alcohol swab and rub it in a certain direction and then I do it but I bump my hand on it and I have “contaminated” the area we has just swabbed so we have to re-swab and well, there were a lot of disappointed french sounds being uttered but she was being as patient as she could be with a blonde trying to give herself her first injection.

And do I finally and do and it was cake! So Easy!  Didn’t hurt in the least!

Cause it was defective.

Total dud.  Absolute pump fake.  HEY!  Sue that pharmaceutical salesmen and let me kick his ass because now we have to wait another 10 minutes for the next sample to cool down and do shove it in my other thigh.

I put my pants back on and Thor and I stared at each other for another 10 minutes.

I know it worked the second time cause it freaken hurt.  And it takes about 15 seconds for it to all get in there so yeah, ow.  But I am a warrior and I plowed through.

“Oh Embrel, course through my body, heal all wounds and swollen joints, help me walk pup the stairs without tripping and falling into the wall.”
So far, so good.  I seem a bit more tired than usual, but I am not bleeding about the eyes and ears and that’s all that really matters.  The only really important thing is that I cannot get sick.  Really.  Like, don’t sneeze near me or touch me if you have an infection or rub on me if you are pussy or leaking anything.  And really just don’t ever really rub on me in any situation.

I was worried because I have heard that the quick pen version of how my meds are injected has preservatives in it but so far, so good.  I have read where some sulfitenots use the version of the drug where they have to mix it themselves and shoot it that way and that is just a little bit too Sid and Nancy for me, so I hope this one works…

I still have to stay on my steroids for now, and i think they mask a lot of my sulfite reactions, so I will continue to gain weight as I have been cheating and sneaking some little things here and there.  Like blonde oreos…cause…well…you know…

Happy weekend to all!
XO

Heather

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Heather Moran

Crazed sulfite-free woman.

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