Archive for the 'lists' Category

13
Aug
10

sulfites in anesthesia. fact.


Attention K-Mart shoppers:  Hans has left the building.  Or as my friend Elliot stated on Facebook the other day, “look ma…no Hans!”

Yesterday I went under the knife and had a disgusting neck mass scooped out like a melon ball.  YAY ME!

It was a class act affair and Skokie Hospital totally rocks.  Very impressed with the whole scene.  I was worried of course, being a flamboyantly out of control drama queen, but I was mostly worried about the anesthesia and what affects it would have on me.  Specifically because I have heard that there are sulfites in a lot of them.  So when it came time to get to pre-op, I was chomping at the bit to have the consult with the drug peeps.  I told them about my allergy.  Skokie is a big teaching hospital so the resident who was assisting with the anesthesia (thank goodness for the ctrl+V button on my keyboard, that word is hard to spell) has never heard of it.  I felt all very puffed up and proud like a peacock to be a a part of her learning something new that day.  And I loved her because she said that even though my pre-op sarcastic wit was adorable and funny, she thought I needed a “little something” to calm me down.  I love her.  They were very cautious and did a lot of research in order to find the correct drug to administer.

Unfortunately, they had to wake me up on the middle of my surgery because apparently I was acting like Kung Fu Panda.  I think they were being nice but they did say that it was a good thing my hands were tied down so I couldn’t follow through on my karate chops.  It seems I was “slightly agitated” and *disinhibited during the beginning of the surgery.  And as my anesthesiologist/girlfriend stated, ” Well, Mrs. Moran, I think it’s just a good thing you have a kind and patient surgeon.”  Holy Hell, what did I DO?  After that I was in this strange state of half alive, have out of it.  I didn’t feel pain, but I could feel the tugging of the sewing.  I could hear conversations about someone’s kid playing little league and someone singing Cream’s Sunshine of your love.  A song I will always now equate to someone stabbing me in my neck, thankyouverymuch.  I also heard the resident who was sewing me up asking the doctor (after he said, oops) “um, Doc? how do I fix this?”  And the Surgeon saying..”Uh, it’ll be fine.  Just leave it.  Throw some tape on it. ”   HAYYYYY-YAH!

I KARATE CHOP YOU!

Seriously, the team was incredible and I would recommend my surgeon and that hospital anyone.

About the drugs.  When I came to my senses, I tried to ask one of my look alike nurses, Peg, June, ChristyMargaret,joanblahblahdrugsthatmakemehappyhmmmmmm

Anyway.  I asked for the list of meds that they administered to me and wouldn’t you know… not one of those 15 blurry nurses could give me an answer. I am going to call medical records and get it from them.  I think it’s really important to know for future reference.

I do know that when I recently had a kidney infection, before I found out about my allergy, my first antibiotic was not working so my old doctor gave me one called Bactrim.  It was BAD.  I reacted horribly to it, like I do with z-pac.  Of course I was getting the severest of the symptoms that I usually get when running into sulfites but I didn’t know it yet.  When I told my dr, he said to make sure to add it to my medicine allergy list.  When I was pre-op yesterday and telling one of the nirses about the sulfite allergy and my bactrim sensitivity, she said that it is really high in sulfites and I was inpressed that she knew that.

Here is a link to some poor victims who share bad bactrim tales  http://www.medications.com/effect/view/22714

THE DOLLS, THE PILLS, THE BOOZE

Well, this isn’t about booze, but I couldn’t resist the movie quote.  And you know how I feel about booze.

Other drugs to watch out for…

Tylenol with Codeine a.k.a Tynenol 3 or 4.   Here are the ingredients:

TYLENOL® with Codeine No. 3 contains powdered cellulose, magnesium stearate, sodium metabisulfite†, pregelatinized starch (corn), and modified starch (corn).

TYLENOL® with Codeine No. 4 contains powdered cellulose, magnesium stearate, sodium metabisulfite†, pregelatinized starch (corn), and corn starch

Whoops-a-daisy..don’t take those!

Here is another list that I found of Medications with sulfites       source

Bronchodilator solutions for asthma

  • Adrenalin chloride 1:1000 concentration
  • Bronkosol
  • Isuprel hydrochloride solution

Topical eye drops

  • Pred-Mild
  • Pred-Forte
  • Sulfacetamide
  • Prednisol
  • dexamethasone)

Injectable medications

  • Amikacin
  • Betamethasone phosphate (Celestone)
  • Chloropromazine (Thorazine)
  • Dexamethasone phosphate (Decadron)
  • Dopamine
  • Epinephrine (Adrenaline, Ana-Kit, Epi-Pen)
  • Garamycin
  • Gentamycin
  • Isoetharine HCl
  • Isoproterenol (injectable)
  • Hydrocortisone (injectable)
  • Lidocaine with epinephrine (Xylocaine)
  • Meperidine (Demerol)
  • Metarminol
  • Norepinephrine (Levophed)
  • Procaine (Novocaine)
  • Prochloroperazine (Compazine)
  • Promethazine (Phenergan)
  • Solutions for total parenteral nutrition and dialysis
  • Tobramycin

Finally, I have been wanting to talk to Dr. Mike and perhaps get a script for an epi pen, not really for my sulfite allergies, but for something else.  My reactions to apples and peaches, even organic and peeled, seem to be getting worse.  I had heard that there were sulfites in Epi pens.  They are indeed OK for us to you…here is documentation

http://allergies.about.com/od/fa1/f/sulfiteepipen.htm

So that’s all I have for now.  The Hans crater is sore and I am getting pooped out.  Next blog coming later is about where to find good organic meats and how I learned some disturbing news regarding sulfite spraying on dole bananas and some other fruits that I thought were safe.

Over and out, captain.

P.S.

*disinhibited definition, according to Wikipedia

Disinhibition is a term in psychology used to describe a lack of restraint manifested in several ways, including disregard for social conventions, impulsivity, and poor risk assessment. Disinhibition affects motor, instinctual, emotional, cognitive and perceptual aspects with signs and symptoms similar to the diagnostic criteria for mania. Hypersexuality, hyperphagia, and aggressive outbursts are indicative of disinhibited instinctual drives.[1]

Let’s see a round of hands for everyone who agrees that I hope I never see any of those people who were in that room ever again.  Especially if my disinhibition turned hypersexual in any manner.

P.S.S.

I love you.  Oooh Oooh Oooh.
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04
Aug
10

The Sulfite Allergy CAN List


(Please note that these are all things that I can tolerate.  Yo may have different severities to things.  This is just a guideline and these items seem to work for me.  THIS LIST IS A WORK IN PROGRESS AND WILL CHANGE so please check back periodically.)

When I was looking online and trying to find ideas of things I can eat, there was nothing out there.  So here is a sample list of things that I can eat and a daily food meal suggestions. Hope this helps and I welcome your comments, input and/or hate mail.

BREAKFAST ITEMS

Greek plain yogurt with fresh fruit mixed in and a dab of honey

natural ovens toasted with butter and honey

Kashi 7 whole grain honey puffs

smoothies made with yogurt and fresh fruit

SNACKS

kettle One Sea Salt chips

Isola Thin Crustinetti’s (found at Whole Paycheck.  Basically mini breadsticks)

Lara Bars:  Read the ingredients VERY carefully.  If you can have nuts, these are fantastic.  I personally cannot but I have a separate nut allergy so  you may be fine with this.)

DAIRY

Greek yogurt – plain

Plain yogurt

cream and half and half

*Milk – this is one of those things that people can or cannot tolerate.  Make sure you find out of you can do this.   Many people actually drink non-fortified clean milk that you can get straight from farmers.

*Goat cheese  – seriously?  I don’t know if this makes me sick or not.  I feel like it might.  I am going to try it one more time today and see what happens.   I had some yesterday and my thumb is swollen like little Jack Horner.

*Fresh Mozz – YES!  Works for me!  And it melts…..yum…..UPDATE.  Yeah, no.  Can’t do mozz…I think it makes me really sick.  But I can have

FETA!!!  I get the athos brand and it melts so it’s good on everything…my favorite is melted a little on top of pasta

*Butter – I love the irish butter you can get at Trader Joe’s and so do the kids

MEAT

(I try to get everything organic and mostly from places like Whole Paycheck.  And I clean the heck out of it and dry it.  Let me also add that I was recently told that the little pads that are under chicken and meat are actually totally comprised up sulfites.  I haven’t been able to find actual documentation for that but I am working on it, so check back.)

Chicken

Turkey

Steak

Most fish (no crustaceans unless fresh right from the sea)

Beef

SOUPS

I made a ton of homemade soup now.  I make my own broth and store it.

I do cream based soups like cream of asparagus, broccoli, green pepper and I am about to venture into some other soups. My problem is that I REALLY miss the onion flavor but it’s something you have to get used to….and you just have to get used t making your own broth….

FRUIT AND VEGGIES

*Tomatoes (Like Parmesan cheese, tomatoes have a naturally high content of MSG so some people cannot tolerate it.)

Celery, carrots, all lettuce including kale and collard greens, green/red/yellow peppers, all berries, beans, eggplant, cucumber, zucchini, avocados, melons, bananas, *apples and *peaches(I seem to have  a sensitivity and not sure if it is from the sulfites that are sprayed once on the crops at the beginning of harvest on even organic fruits), Lemon, lime, mangoes, kiwi

OTHER

honey

olive, canola and sunflower oil

fresh pepper

sea salt

fresh herbs and organic spices (no spice or seasoning mixes)

tea with unbleached only bags

fresh squeezed orange juice

BOOZE GLORIOUS BOOZE

Sierra Nevada beer (the original blend)

Clear good tequila like Patron or1800 Silver  (mix it with fresh OJ and fresh mint, YUM)

Bonterra Organic Chardonnay  (I can do this, but only with the twisty top from the organic section at The Jewel or Trader Joe’s and Whole Paycheck)  NOT ALL can tolerate this.  Thank the Heavens that big momma can.

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17
Jun
10

Let’s Play the “Can I Have?” Game!


Hello, hello, hello….and thank you for stopping in to play” the “what the hell can I eat” game!!!

Round one starts like this: I am just going to throw a list out into the world…and anyone who knows the answer, let me know.  This is how clueless I am.  This list may grow from time to time, so keep coming back to check and see if anyone has helped….if you have any questions yourself, you sulfite-free heads, let me know in the comment section and I will try to find out for you.

Are these things sulfite-free?

goat cheese

tomatoes

radishes

agave nectar

butter

eggs

La Croix (or any carbonated water)

any pop?  At ALL?

dates

all berries?

fresh beets

xanthan gum

potato starch

tapioca starch

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15
Jun
10

What the heck CAN I have…


I am going to make a list of things that I am learning to eat.  I will add to it as I go along.  There is not much on here because, frankly, I don’t know what the heck to eat.  I am sure that there will be Cecille’s corner ideas and  Tracy suggestions.   A lot of these ideas came from those two so here goes…

*I season organic chicken breasts with sea salt and some fresh dill and toss them on them grill so I can have them all week.  My favorite thing to make on the run is a chicken avocado sandwich.  I like to get that really good Italian loaf bread from the bakery section at the Jewel.  The one that only has like 5 ingredients in it.  I lather that up with avocado and throw the chicken on there with some lettuce.  Yummers.

*Avocados.  I use the heck out of these.  They replace all condiments for me.  Go to Costco and buy the big bag.  Get a big bag of lemons too.  I use a ton of lemon juice.

*Salad dressing is a hard one.  I have been putting a little LF yogurt in the blender with fresh dill, a little honey, cucumber and a bit of olive oil.  I just keep that in the fridge and it lasts a few days. My new favorite dressing is lemon based. I take 1/4 cup fresh lemon juice and mix with fresh sage, rosemary and thyme. Little seasalt. Mix well then I add a cup of good EVOO. Lasts a few days and I even dip veggies and bread in it. YUM.

*Basically, I am just eating really fresh.  All organic veggies.  I wouldn’t waste money on some organic things like bananas and avacados, stuff like that with thick skin. I am also growing some veggies in my garden.  All fresh hhhhherbs on my back porch.

*For on the go, Lara bars are filling.  Watch out for the ones that have raisins and coconuts in them.

*To satisfy the munchie hunger, Cape Cod chips or any other chips made in sunflower oil is okay.

*Another SIL on Thor’s side…a.k.a. RunnerGirl….she has this same allergy and she has been eating raw for years.  She is an expert at it.  She suggested something yummy and I have been drinking it.  You can’t really have pop or other drinks, but you can have fresh juice…an alternative to juice is to put some fresh mint, ice, fresh lime or lemon juice and a bit of agave nectar or honey into the blender (I have a Magic Bullet. Haters, suck it.  This thing rocks.)  I like the agave nectar because it is just a touch less sweet than honey.  This is a really refreshing cool drink for the summer and I recommend.

*crackers are hard.  I just loved eating crackers and cheese.  But there are some gluten free crackers that are good.  Just stay away from anything that has corn or soy in them.  Costco has these pita round crackers that are awesome.

*I made this really delicious kale and potato salad.  I will post the recipe.  It’s really easy and I ate it warm after I  made it and cold the next day.  Kale is SO good for you….

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15
Jun
10

Do Not Eat List


DO NOT EAT THESE!

All allergy blogs need one of these, so here you go.  You see something on there that I missed, let me know and I will update it….

no natural sulfites

like grapes (wine),

onions

garlic

mushrooms

beets

anything pickled, including olives

eggs

cheese

No dried herbs or seasonings, only fresh herbs

processed with preservatives

so many things in a restaurant

regular salt (can have sea salt)…

any with corn in the ingredients,

anything with sugar in the ingredients (except cane sugar),

pretty much most booze, except really really good tequila so get those sulfite free margarita recipes going!

maple syrup

MSG

caramel color

lunchmeat

coconut

pork

vinegar

soy

salmon

peanuts

all condiments – mustard, mayo, ketchup, relish, steak sauce, etc.

gum

label buzzwords:  There are six names used for sulfites: sulfur dioxide, sodium sulfite, sodium bisulfite, potassium bisulfite, sodium metabisulfite, and potassium metabisulfite. Sulfites, bisulfites and metabisulfites are all dry chemical forms of the gas, sulfur dioxide.

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15
Jun
10

So, what’s wrong with you again?


Ok, so I better explain this crazy thing.

I am still trying to figure it out myself.  There are three people that are really instrumental right now in helping me figure this all out.  First, my doctor is amazing.  Let’s call him Dr. Uke (He plays a mean ukulele).  I have been sick for the better part of 4-5 years.  The doctors along the years have thought many things but my last round of doctors where just not into me.  They didn’t want to deal with the fact that whatever I had was hard to diagnose.  I will share my symptoms in am minute, but the reason I love Dr. Uke is that when my joints started to freeze up and I knew I had to get new drs, I went to him, gave him the list of symptoms and within a day of him doing some research, he was able to come to a pretty strong pre-diagnosis of a sulfite allergy.  At first, I was like, what the HELL is that.  I only knew that it had something to do with my habitual and almost sexual love of chardonnay, so I knew that I was in trouble.  Dr. Uke is really amazing.  He is one of those rare doctors that actually cares about the patient and will put in as much time and concern as it takes to make you feel well-taken care of…I hope he wants me to use his real name on here so I can spread the word about what an amazing white coat he is.

But I did my own online research (always a bad thing) and it really did open my eyes. WOW.  I think I really did cry from relief.  So,  he has been and will still probably run a bunch of tests, but in the meantime, I am on a strict elimination diet, which is causing me to be pissed off pretty much 24/7.  He hooked me up with an awesome nutritionist that I will refer to as “NoYouCan’tEatThatEitherSorry”

Dr. Uke has a friend that suffers from this.  I will let her decide whether or not she wants me to out her.  For now, I will call her AWESOME.  She has helped he out a lot and I  have a feeling that this is the beginning of a beautiful, suflite-free relationship.

So, without further ado…here is what I have about this beast so far:

This allergy or intolerence, whatev’s,  is pretty complex.  I secretly happen to think that (1) a lot of people are out there feeling like crap and don’t know they have it because a lot of doctors don’t really know much about it and (2) More people are going to develop this intolerance because of all the processed food our society eats.

In 1985 the US FDA banned the use of bisufites on fresh fruits and vegetables after it had been linked to 250 cases of anaphylactic shock and a dozen deaths. However, it’s still allowed in packaged food, and wine is loaded with it.

Since I have cleaned my body in the last couple of weeks, my reactions are getting stronger and I am having to deal with changing my eating at a rapid pace.  I have put together a list of can NOTS but hopefully will have a positive thinking list of cans soon There is not a lot of info put there about this and because of various FDA regulations, most of these things are hidden in labels.  Basically, foods that come out of the ground and are fresh.  I can have most meats, but pork and shellfish I cannot  (I CAN have fresh lobster!)  I just can’t put any seasoning on anything, except fresh herbs and sea salt.  This is not something that I will grow out of or that I will get over.  I have to accept it, learn how to live with it.    But it will be a bit hard for me for a little bit and for the family while we all have to adjust.  My husband Thor and the kids, Alpha, Cracker and Bambi are being amazing.  And the good news is that I don’t have anything worse like lupus or another auto immune that I totally thought I had.  I will be so healthy, lose weight, lower my cholesterol and hopefully my asthma will go away.  So YAY!

no natural sulfites

like grapes (wine),

onions

garlic

mushrooms

beets

anything pickled, including olives

eggs

cheese

No dried herbs or seasonings, only fresh herbs

processed with preservatives

so many things in a restaurant

regular salt (can have sea salt)…

any with corn in the ingredients,

anything with sugar in the ingredients (except cane sugar),

pretty much most booze, except really really good tequila so get those sulfite free margarita recipes going!

maple syrup

MSG

caramel color

lunchmeat

coconut

pork

vinegar

soy

salmon

peanuts

all condiments – mustard, mayo, ketchup, relish, steak sauce, etc.

gum

label buzzwords:  There are six names used for sulfites: sulfur dioxide, sodium sulfite, sodium bisulfite, potassium bisulfite, sodium metabisulfite, and potassium metabisulfite. Sulfites, bisulfites and metabisulfites are all dry chemical forms of the gas, sulfur dioxide.

I hear some beers might be ok…these things vary for people. So do the reactions. The reaction I seem to have now is pretty harsh.  I do have bad asthma and a lot of other things that effect my heart, headaches, weakness, etc, But the most severe reaction now is tht it rapidly attacks my joints, mostly at least two random different ones at the same time. And it can last up to 2-3 days for them to clear up.  I ate a veggie sandwich at Portillo’s last week and after 2 hours, my right shoulder and left hand complety froze and I could barely drive my steering wheel to get me and the kids home,  So yeah, scary.

I just have to learn some quick, easy recipes that I can pre-make and carry my food around with me in a cooler. And like my new friend AWESOME who shares the same allergy told me, just learn how to work around feeling normal and a part of everything at restaurants and social situations.

The hardest thing for me is obviously the wine.  It really is depressing for me.  A good glass of wine at the end of the day (or three) was really the treat that I have myself.  And cheese.  And garlic.  Onions.  Some of these things I may be able to eat again.  I am going to remain optimistic.

My biggest symptoms:

asthma

severe joint pain

severe fatigue and weakness

high blood pressure

headaches

Renaud’s syndrome

So there you go!  I feel better already now that I am eating healthier and I hope I can inspire a few slugs like me to do the same.

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Heather Moran

Crazed sulfite-free woman.

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