Archive for the 'Rheumatoid Arthritis' Category

13
Dec
11

One Arm Wrapping Doesn’t Have To Be Lonely…


I apologize the for low quality of this photo. Perhaps you will forgive me, since I only have ONE WORKING ARM.

I blame Love’s frozen yogurt. You chilly,swirly bastard.

I was with Cracker yesterday, just leaving an appointment and I saw a sign that had this retro international symbol of awesomeness…

"Open to the public!"

I totally slammed on the breaks and did a U-ey…man, I used to love that stuff! Where has it been??? The whole Frozen Yogurt Movement!! It used to be all over the place…wasn’t it? Am I crazy? I mean, I think the last time I had one, I was wearing a Bosom Buddies t-shirt. I kept on telling Cracker it was ice cream, hoping that it wasn’t going to taste like crap.

It was inside of a workout facility for seniors and they were trying to promote the “healthy” vibe in there. When we walked out, some old lady actually asked Cracker if she just finished working out. Cracker giggled adorably and said “no”. And the lady said, in all seriousness, “then you don’t deserve to have that”. I seriously, seriously almost bitch-slapped her. Seriously.

So, you remember, you can twist that all up together…two flavors…remember that???? So I got a french vanilla, just for nostalgia-sake, and some sugar free/fat free pepermint. Holiday party in.my.tummy, ya’ll!

HELLO, SELF, you idiot. I am allergic to anything NOT PURE. There is nothing that is pure in a sugar free/fat free yogurt. Like, what IS IT? And it kinda tasted like peppermint baby vomit. But I ate it in defiance. The whole freaking thing. I could hear Cracker in the back seat, going “ew” a couple of times, but I think she ate it in defiance, too. In defiance of what, I am not certain, but has a tenancy to run a little surly.

It took about 30 minutes before I started to feel “THE TWINGE” in my left shoulder. It can be any joint. My immune system likes to change it up and leave me guessing. “THE TWINGE” is quickly followed by the voice in my head saying “Uh oh. ‘THE TWINGE.’ I will be virtually lame within an hour.” By the time we finished errands and I am rushing home to teach a lesson, I could barely steer. On goes the sling. I really need to bling that thing up.

After dinner, I realize that I have to get my nieces’ gifts in the mail, wrapped, so they can be delivered in time for Christmas. I annually SUCK at all things having anything to do with Christmas deadlines, but “As God is my witness…not this year!” she says, holding up a radish to the skies…

Look, she only has one arm, too.

Now, I had my arm in a sling, not because it’s frozen, but because if I move it a cillimeter of a millimeter of an eigth of an inch, shooting daggers of pain whip up my arm, through my shoulder and stab my brain. So, I just try not to move it.

Thor sweetly offered to help, but he was busy helping Alpha finish the project at the last minute that he had TWO WEEKS TO DO BUT DON’T GET ME STARTED. Cracker was off somewhere having her Barbie’s kiss and hug ’cause that’s her newest thing and Bambi is running around the house like the quadruped Turkish tribe who walks on all fours. We are strange, yo.

So I had to wrap all these presents. Bambi eventually returned to Bipedalism and offered to help. She actually got really excited and put on Christmas music. She said, with kind of a maniacal and over-caffeinated look in her eyes, “This is great, you guys, I feel like an only child!!!” *Sigh* I love her.

And I was thinking while we were doing it, every crease, every fold, every piece of tape thrown on there and the bow, Lord of the RINGS, the bow…all of it was literally made very slowly, painfully and with a helluva lot of love. And in the end, with all three of us together, Thor and I agreed on one thing: a nice wrapping job, done well and with care, is definitely part of the present 😉

And I will NOT be accepting Love’s frozen yogurt gift certs this year, thankyouverymuch.

(And you can only imagine how long it took me to type up this post with only 4 fingers from my right hand. Love, people; that’s love.)

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19
Feb
11

Goal of the day: Do not stroke out.


Oh yeah.
So I go on Enbrel and my RA is amazingly in remission.
Dude. I RAN up the stairs the other day.
Thor said, “Heather. You just ran up the stairs.”

OHMIGOD!
Cool!

But for some wack-a-doo reason, my blood pressure is freaking out. AlrightalrightalRIGHT.  STOP LOOKING AT ME LIKE THAT.  Ok.  I have been cheating, people. A teeeeeeeeny bit.  I admit it. I thought I would test out the waters since I have been on the new meds.  I got a little cocky and decided to shove some ion SO2−3 in my mouth.  See what happens.


Funny.  It didn’t look like this in the grilled cheese sandwich I shoved in my mouth.

 

I think all this evil sulfite compound is doing is shaving important hours off of my life. I called my loving, adorable and very talented Dr.Mike (and Facebooked him.  Oops. He might just kill me at my appointment on Monday. Stay tuned for the results.) and he is going to fix me up but good.
I also talked to my Rheumy nurse to rule out this as a side effect of Enbrel and she said no but she was concerned about my BP (it’s hovering constantly around 160/107) but she told me to just take it easy this weekend…“lie in a darkened room and relax all weekend until you can get in to see Dr. Mike.”)
Oh, that’s rich. HA.  HA HA.  Stop….stop making me laugh…snorting….my rock hard abs hurt from laughing so hard….milk spittake ensues.
There is no resting in a dark room.  Not over here at the residence of  666 Chaos Lane, in CrazyHeatherville, USA.
I am a mother of three wild children, a vocal recital to run today…overnight guests coming and and a lacrosse game, just to name a couple of things on my dance card for the next 24 hours.
DAMN YOU, Regal Theatre movie pretzel with a side of cheese!
I CURSE YOU, baloney sandwich on Wonder Bread white. (Oh, hot dayum, that tasted good.)

So I am medicating myself with advil and much later, in my darkened room, a glass or 2 of wine.

*********************************

Is my BP high from the food?

We will see. I am going cold turkey and see if it will come down.  Is my body just really pissed at me because I am taking Enbrel and it won’t let me swell?  So now it like, ok bitch ,that’s how you want to play it….ZAP!  (blood pressure spike HERE!  and HERE!….and just when you think it’s going down to normal…HERE!)

I do have a really swollen lymph node in the armpit of my….armpit….lovely, no?  And it really hurts.  I feel like crap so I might just have some little bug. Enbrel basically kills my immune system and kids have been sick all around me this week.   Seriously.  Like one kid at a Valentines party sneezed right on me.  It was all over my arm.  Gag.  That, and Alpha sneezed on the butter the other day.  I mean it.  For reals.

Wish me luck, wish me willpower, wish me to live through the day…happy weekend everyone!

31
Jan
11

When in doubt, post kale.


Well, hello there.

I have been an absentee blogger.  Bad blogger, BAD BLOGGER.

I have mostly been trying to wrap my head around this whole business of my rheumatoid arthritis, which has hit me like a mack truck.  And, what to do with this blog.  LOL

I mean, I definitely have an allergy to sulfites that makes my RA worse.  But this site seems to be geared towards sulfitenots and lately all I really want to focus in is the RA crap and I don’t want to bore anyone.  More than I usually do.

So I thought, I would just re-invent this blog to meet both needs.  And the RA peeps are gonna have to deal with the sulfite stuff and the sulfitenots are going to have to deal with the RA crap.

And the sharks and the jets are gonna have to play nice at the park.

I found a recipe that involves kale because it’s sulfite-free and the antioxidants are huge in helping to fight RA.  Will post it in the recipe section.

I feel like I have gotten into a pretty good routine with my no-sulfite eating lately.  I definitely am not getting the major attacks as I used to, partly because I know how to check everything now and also, friends and family are being really supportive.  Everyone has been really conscious and caring about what I can and cannot eat and it has made a huge difference.

There is still the pink elephant in the room question looming around all the time though:

Do I truly have this allergy or is it just my RA?

My Rheumatologist kind of doesn’t believe me.  LOL  Like, I love her, she is so cool and doing an amazing job with me, but when I bring it up, she looks like this

And in her cute french accent, she looks at me with a slide glance and says, “I don’t know about all of that.”

but I DO!  I DO know!  I eat something and 4 hours later, something bad happens.  OK, so there is no test.  But that should be enough, right?

We need to find someone, somewhere, some dr or allergist who will hurry up and make a test so we can all take it!

Let’s go one step further, people!  We need our own ribbon!  But instead of it being pink or red, white and blue, or yellow, maybe it should look like this:

Wear it proudly, sulfitenots!  (Don’t stab yourself putting it on.)

 

ok, I have to run.  But I also wanted to tell you that I got a Cuisinart breadmaker for my birthday and it’s AH.MAY.ZING.

Before I got it, I had bread pimps out there in the world for me…minions who would grab the Breadsmith bread that I can eat that you can only get Whole Foods or stores that are not near me and I would have to have them store it in their freezers.  But now I can make my own and it’s sooooo easy!  Who would have thunk that this blonde can make hot, succulent, steamy rosemary bread?

That’s it.  Have to go make a batch right now.

Huge snow storm coming to Chicagoland tomorrow…Stay warm!

 

 




Heather Moran

Crazed sulfite-free woman.

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