Archive Page 3

02
Dec
10

To top it all off…my underwear fell Down


I have ‘roid rage.

And I am surrounded by a virtual plethora of people who really do not care to deal with me at the moment.

I am having a problem dealing with even the small dose of prednisone that I am on for the next three months to help to get my RA in remission for a bit.  I am supposed to be picking out my new medications for all of this but I am so confused and overwhelmed and now manic and slovenly.  S’not pretty, ladies and gentlemen.  So I am ignoring it all and will instead tell you about how my undies fell down yesterday in the halls of a catholic school.

No, I am trying to share one of my weird dreams. No, I am not a total perv.  It was just part for the course of my ridiculously mentally exhausting day yesterday.

I was supposed to be helping out at a local high school to cast their spring musical last night.  They needed a vocal coach to help them in that department and I was happy to help, as I did last year.  But I made the commitment months ago and didn’t know that I would end up sick and feeling like the Son of Sam on crack.  It was too late to back out yesterday, but I really didn’t feel very up to the task at hand.

I had a horrible day of freaking out and crying over the littlest amounts of spilled milk and nothing was going right.  My holiday show sold out (a good thing) but trying to schedule an encore performance was stressful, so I was all hopped up on that drama for the afternoon.  I also had a hair appointment scheduled AFTER the auditions, to fix my nappy roots because I looked a lot like this

Seriously, it’s been months.

And I have 3 gigs this weekend, 2 of which are in WI at a 900 seat house each day and the girl need her hair did , yo.

So I had to be at, oh let’s call it, St.Mary Ingatious, Peter, Paul and All the Saints for Christ’s Sake’s Catholic school to help them right before 3pm and I can’t even concentrate my insane mind on getting ready and getting Cracker ready to go to the neighbors and I can’t find my keys and oh yeah, it’s snowing.  The first snow.  And a cold ass snow, to boot.  And I have Raynauds so I have two pairs of those cheap Walgreens gloves on, medication that I take at night for this and even after all of that, my extremities still look like dead hooker hands and I can’t turn the wheel.

I need to go through Starbucks, because, well, who wouldn’t in my condition and I am running late and I finally get to St.Mary Ingatious, Peter, Paul and All the Saints for Christ’s Sake’s Catholic school and of course school is just letting out.  I find a space and I am carrying my water and my coffee and my purse and some SF bread that I am literally shoving onto my my mouth because I (a) have roid rage hunger of a thousand mutant samurais and (2) I know I wont eat for hours.  I have crumbs stuck in my lip gloss, bad hair; a total disaster.  I am walking in high heel boots, which is totally insane because I can hardly WALK these days and as I get to the locked doors to the auditorium, I start to feel a strange sensation [not a good one] near my ass.

I kick, and punch and fall into the doors, hoping someone will help this poor woman, carrying all this crap and obviously dealing with some sort of steroid-induced haze.  But no.   I have to walk across, around and over 13 miles to the left of the 7th circle of the sun to get to an open door.  About half way, I realize that what is happening in my pants is that my underwear is falling down and I have not one loose little finger anywhere to get in and dig them out.  I know at this point that I have to go in and find the closest girls bathroom and STAT.  Please understand that while I am losing my skivvies, my pants are totally intact and I am absolutely not doing anything illegal. It is a total undergarment accident, completely unintentional and naked to the human eye.

Because I was late, I was entering the hallways, avec a full cup of coffee, as the BELL RINGS.  Holy Cannolli, here they all come!  Now I am a pinball.  A fat, sweaty, tardy, angry little pinball being bumped, shoved, pushed and trampled.  Some girl actually flipped her hair in my face and it tasted like coconut lotion.  Grody, people.  Just…come ON.

Do they not see me?  Do they not notice coffee dribbling from my arms, tears streaking down my face.  I am a woman, invisible.  Demented, directionally challenged and losing her underwear.

That’s right, OMG, My UNDERWEAR.

A perk of not being able to eat food anymore is that I have lost 25 pounds.  A non perk is that my granny panties don’t stay up anymore.

So now I am walking through the crowd, flung around like a blind lemming.  So paranoid that these poor innocent children might be able to tell through my skinny jeans that my underwear has fallen down and is hanging down in my pants on either side of my thighs.  It’s truly the worst feeling imaginable.  (If you are a girl and you have experienced that moment when you think you have gotten Aunt Flo and it’s noticeable to everyone in the world as you are walking around, you can relate to this feeling.)

OF COURSE they couldn’t tell.  OF COURSE they were not looking. OF COURSE they had no idea they were practically stepping on and closing hallway doors on one of the people that could guarantee that they were going to get the lead in the school play.  How would they know?

When I finally get to the auditorium, throw the rest of what is my coffee, purse, smushed bread and all my other crap on the table and find a bathroom where someone isn’t changing into their dance belt, I leap into a stall, hoist up my underwear, fold it over the top of my jeans and shove it under my belt, pull down my sweater, wipe a tear from my eye and get ready for battle.

Have underwear, will travel.

These poor kids.  They have no idea that there will be consequences now to them being unprepared for their audition.    They don’t realize that when they walk in with attitude and roll their eyes when I ask them to sing a song again, that I will actually be so roid-influenced, that they will piss me off.  I will recognize the shovey girl who made me eat her hair in hallway B.  I will write their name on the chorus list with a sharpie because they looked at me wrong.  They deserved a lead, maybe, but don’t give me that look, because I get it from you one more time, and you are going to be tree #3 on the left.  You got it, cookie?

None of this of course really happened. All the students was adorable, fantastic, thoughtful, professional, sweet and charismatic.  I treated them all fairly and with respect.  But in the padded cell that is my mind, it all went down the kooky way.  I actually love the woman who heads up the department and all the people working on the show and I wish I didn’t have so much going on because I would have absolutely loved to be a part of the whole process.  Talented kids, staff all around…some day I hope to do more of that,because it is so rewarding to me.

I finally made it to my hair appointment 30 minutes late.  Because of this, I had to wait another 40 minutes and I was still getting my hair done at 10:15pm. None of this matters, of course, because my hair looks friggen AWESOME.  And, also because there was some wine involved.

And now, kittens.  To bed…to lie there and stare at the walls, freak myself out and act like a crazy woman, all in the comfort of my bed.  Thank God for the Droid sleep app and a pair of ear buds.

UNDERGARMENT INCIDENTALS

I will confess that this was not the first time, but the THIRD time I have had a public problem with my underwear.  Ask my best friend…we will call her FraAllison.  She will tell you, alright.  Truth.

And I will share both of those incidents with you soon.

Until then, may you undies stay on, may your coffee not spill, may you not have to eat teenage, flat-ironed hair in a hallway and may you sleep like a baby.

XO

19
Nov
10

Now what.


I have been gone awhile….

HEEEEELLLLLLOOOOOOOOOO!!!  Long time, no blog!

Insert old lady health rant here:

I have been feeling really under the weather. A few weeks ago I started to have more trouble getting around.  My feet had been giving me a lot of pain and the shoulders and hands but then my knees started to get really bad.  I was literally having a hard time walking.  Going up and down the stairs was brutal.  It turned a bit scary.  My mom came over and was like, WTF.  I hadn’t realized how horrible it looked to people who haven’t seen me because I had slowly gotten worse over the course of the month.  I knew that this was something other than my sulfite allergy because I had pretty much cut my eating down to chicken, steak, mashed potatoes and one or two veggies.  But I was getting worse by the day.  I have something called Raynaud’s Syndrome where I lose circulation in fingers on both hands.  When they get cold, they look like dead hooker hands.  Inappropriate?   Perhaps.  But true.  It has really turned aggressive though recently, even in my house and I have been walking around cleaning with mittens.  Perfect for dusting.  I got a new script for it, that seems to help a bit.  At least in the house. LOL  Right now I have one finger that is terminally freezing and I actually think it’s rather quirky and adorable.  And will come in handy to cool off a cocktail if I just stick my finger in there.    But yes, so other things were just getting worse, really fast.  I was having trouble putting on Cracker’s tights, making the kids lunches, brushing my hair, even driving my car was almost impossible!  What a crazy thing!

I hobbled myself over to a great new rheumatologist and she was actually quite amazing.  She listened to me and told me that she will not stop until we know what is making me sick and help me feel better.  WOW!  I feel like her and Dr. Unger are like the super heroes of medicine in my life.  Wonder-twin power activate…shape of….Rock star doctors!

Anyhoo, she checked me all out and took some xrays.  She said that everything preliminarily pointed to lupus or Rheumatoid Arthritis but she wanted to do a bunch of blood tests.  Based on some other tests that Dr. Mike had taken, she was able to rule out Lupus.

So the other night, while I was out teaching voice lessons, Dr. Rockstar I will call her (cause she is) called Thor and broke the news that I tested “very positive” for Rheumatoid Arthritis.   I have to say that I was upset about it but I felt almost a sense of relief to know what was wrong with me.  I knew that there was something beyond the food allergy.  I just knew it.

I remember about  year ago, Thor and I took the kids to the Museum of Science and Industry and my shoulder was killing me.  I mean really painful.  So I called my old doctor, who btw, was a very attractive man who looks like a hot Bill Clinton and very cool, but didn’t really seem to want to help me out very much.  I called and told Dr. Clinton about my shoulder.  I said that it hurt when I raised my arm.  He said, “then don’t raise your arm.”  Mm hmm. And then he tried to give me anti-depressants.  HRUMPH.

So yeah, I guess there is a sense of relief that Dr. Mike found my crazy food allergy and Dr. Rockstar found this other thing.  I know that I have a lot going on right now but I think that I am totally on course now to feeling so much better.  I am going to continue to eat as pure as I can and even might try some water aerobics.  (No video allowed.) I started a new med yesterday for the RA and I already feel incredibly better.  I mean, REALLY better.  Like I can probably run up and down the stairs if I want 😉  If I want.  But I probably won’t want to.  Because I am a lazy ass.

I don’t know much about RA.  I didn’t do much research on any particular auto-immune disease because I didn’t know what I had and I didn’t want to freak myself out.  But I have to share this one story with you…

Yesterday Thor and I were lounging in our bedroom talking about the diagnosis and he had spent some time during the day researching on the internet.  I hadn’t really done that yet, cause I am kind of skiddish and most definitely an alarmist.  So we started to Google like big fat dorks next to each other on our respective Android smart phones and I search for “Rheumatoid Arthritis.”  I see a bunch of links and so I just randomly pick one and hit enter.

This is the first image I pull up that takes up the entire screen of my phone:

GGGGGGGGGAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHH

Of COURSE that is the very first image I see when I am like, hmm…ok, let’s find out about what I have….hmmm….ok…….AAAGGGGHHHHHHHHHHHHHHHHHH

It’s not funny, that poor woman. But Thor and I laugh through pain and this was definitely a funny Heather moment and I couldn’t love Thor anymore than that moment, when he turned to me with laughing tears in his eyes and said, “Better blog that, honey.”

So here we are.  I have to continue to dodge the steroid bullet because I am supposed to start them and be on them for 3 months.  Heather+prednisone=

I know I have to do it. I know it will protect my joints.  I know it’s inevitable.  But I can’t sleep or act like a normal human being on it, so for now, I will blissfully ignore the inevitable.  “Oh, Look at that bird over there!!!!!”  (Heather slyly sneaks out stage left.)

On The Food Front

I am sick of cooking.

I am really bad at it.  It’s not getting better.  I am sick of going to restaurants and staring at my family.  I don’t like them when they are eating.  Last night I was shaking some of that pink antibiotic, stinky, icky crap that Bambi needs for a gum infection and the top wasn’t on and it flew all over the kitchen. Everyone was so un-phased and used to liquids/foods/other cooking objects flying around the kitchen when I am in it.  It was very business-as-usual and complacent as hell and I was mildly annoyed.

I am looking forward to a tequila and orange juice cocktail tonight.  That will be a highlight.

I also have some broth that I made this week that I have to haphazardly turn into a soup.  So hopefully the tequila will help me with that.

This weekend, I am planning what I am going to bring to my cousins for Thanksgiving…they are having it catered so it should be a sulfite orgy on the table.  Will sneak in covert clean food *wink*wink*

What is everyone else doing for the holiday meal?  please share!

Cheers!  It’s Friday!  This has been fun blogging, I missed it. I am thankful to have the use of my digits back and I love you all, my little Sulfite-nots.  Happy Weekend and a Blessed Thanksgiving!

20
Oct
10

Starbucks Yummy Treat


 

I just talked to someone from Peeled, Snacks, Inc and they confirmed that there are no sulfites added in the individual dried fruits.  There are sulfites added in the mixes with nuts that you can sometimes find in airports, but the other stuff is ok.  I popped some of the mango in my mouth now and there is definitely a party going on in my tummy right now.  YUM.

Ok, I am heading out on the road with my band to do my Rosie Clooney show on the East coast.  Very nervous to travel because of the food, but bringing a cooler and hoping that I won’t get sick of plain Subway tuna sandwiches ( I don’t know why, but I can eat those. )

When I get back, I will post my #2 Blonde Food Challenge: Cream Of Red Pepper and Potato…Have a great week!

 

19
Oct
10

Sulfite-Free Kale and Lentil Soup


Sulfite-Free Kale and Lentil Soup

BLOND FOOD CHALLENGE #1 COMPLETE!

(And there was no bleeding.)

So yeah, there it is…it was actually really tasty.

I have to warn you something: Kale+Lentil=full colon detox.  That is all I am going to say.

(I modified this recipe to be sulfite-free from one that I found at http://eggsonsunday.wordpress.com Thank you to them.  Their food looks really yummy with lots of sulfites and her kid is really cute…)

Here is how I got there…

use this stuff

Ingredients:

  • 1 1/4 cup lentils (I used the green ones)
  • 2 tbsp Olive oil
  • 1/2 tsp ORGANIC ground cumin (this may not work for everyone)
  • 1 tsp sea salt
  • 2 organic bay leaves
  • 4 fresh organic cilantro stems+4 fresh organic parsley stems, tied in a bundle. (That was interesting.  Think Bridget Jones Diary.  More later.)
  • 7 cups water
  • 4 cups organic kale (You can also use organic spinach)
  • 1/4 cup fresh chopped cilantro
  • ground black pepper to taste
  • dollop of plain greek yogurt for serving (I always use Fage…it’s so creamy and yummers)

OK, so first of all, I picked some gorgeous basil and parsley from the garden but then I tied it in a bundle.  I didn’t really get it and I was clearly being extra blond.  I didn’t really get how to “bundle it” so I went out to Thor’s “shop”  in the Man Cave a.k.a garage and I found these three things.

 

plastic tie thingies, duct tape and some questionable string

Please do not forget to the notice the bottle of organic wine that helped me get through this.

Thought process: plastic will melt, duct tape will give me cancer.  I think that the string had saw dust all over it, but…

I immediately thought of this:

"There is not enough blue food in the world."

I decided, “what’s a little garage dirt?  At least it’s not blue string.  And so we move on.

Heat the olive oil over medium heat in a stock pot or large sauce pan.   Add the water, lentils, 2 bay leaves and the bound herbs.

 

Crikey, that looks nasty.

I brought that to a boil, turned it down to simmer and I covered in for about 20-30 minutes.

After that, remove the lid and toss in the kale.  Let it simmer for 10 more minutes and toss the cumin in too, if you can use it.   Right near the end, I put in the cilantro, sea salt and pepper.  Garnish with parley spring and yogurt dollop.

You can also serve the leftovers over basmati organic white rice.

Enjoy!

(Next up, Sulfite-Free cream of red pepper soup.  Perfect for these crisp, fall days!)

 

 

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14
Oct
10

First cookoff item: Baby Bear Porridge


I woke up without the use of the OTHER hand.  I ate virtually NOTHING yesterday but I did have some baked Kettle sea salt chips.  The baked part was new.  REALLY?  Would that be it?  *Sigh* Will have to call company.  Anyway, I am henpecking with one hand so you know I started typing this entry last Thursday and I am still going.

But I must rise and conquer. Can’t blow on my stupid first day of the stupid cook-off that stupid me said that I would stupid do.

So, I decided to make a breakfast item because I never know what to eat in the mornings and I am looking for something healthy, filling, fast and something that won’t swell my appendages.  I smell oatmeal ceilings.  Off to the races!!!!
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13
Oct
10

Sulfitenots: Share Your Story!


 

 

Kumbaya, sulfitenots, kumbaya.

 

We have had a lot of new people pop in at the blog and I would love to hear about everyone’s stories.

Please share your diagnosis story, your symptoms, how you are coping, general rants and bitches are encouraged.

My quick version is that have noticed intolerances about 5 years ago with red wine, chocolate and caffeine.  (I know.  Most people’s staples of life).  I would get irregular or rapid heartbeats.  So I eliminated and was better.

Over the past 5 years I have had a range of symptoms, weakness, fatique, fogginess, reynauds syndrome, headaches, bum immune system, etc. Over the past year, I have slowly had joint swelling that has incresed severely and that is when I decided to move drs and get some real help. I found the wonderful, amazing Dr. Mike and he diagnosed me but the allergy is so rare.  Still looking for help in dealing with it.  There is no pill to take that I have found and no real clear cut help.  So, here we are.  I want to have you all over for wine and cheese but DOH I can’t so let’s share here 🙂

 

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13
Oct
10

Kitchen blonde+holiday planning=challenge


I went to a weenie roast the other day.

I ate beforehand and brought my own wine.

But I just couldn’t help myself with the food.  It was so amazing and forbidden.

This is what I ate:

  1. 1 ritz-like cracker dipped in yummy, slutty pizza dip
  2. 1 bite of Thor’s personal serving of cheese-chili quiche
  3. 1 freshly made burger, seasoned with REGULAR salt and pepper with a slice of tomato and lettuce on top.

That was enough to put me into 3 days of hezzell.

And it really got me thinking about the holidays and all the partying I am about to do.

I DOUBLE DOG DARE ME!

OK, so this is the challenge I am giving myself.  I will be making one thing a day that we, us sulfitenots, can eat.  Will some of it land on my wall or ceiling?  Probably.  Will it be edible?  Doubt it.  Will any of you want the recipes?  Not Way, Shirlay.  But as Thor is my hot*ss husband/witness, I CHALLENGE ME TO A COOKING CHALLENGE!

 

 

SUPER BAD COOK LADY TO THE RESCUE!

 

Alright, sheesh, now I just blogged it so I have to do it.

  • I declare to find my apron on the floor in the corner of my pantry and remove all dust balls,dead spiders and roll-away Cheetos balls.
  • I promise to wash my hands and not adhere AT ALL by any 5 to 10 second dropsie rule.
  • I swear that none of you will ever have to actually sample what I am making in person and that you will be much better off making it yourself.
  • And I vow to not buy anything from Whole Foods and pretend that I made it myself.

 

WONDERBLOND POWER ACTIVATE!

FORM OF: SULFITE-FREE COOK!

and now……………………………………………….OFF TO THE JEWEL!

 

(Sh*t.  Can’t find keys.)

 

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13
Oct
10

Raise the towel or throw in the towel?


…and now here I sit with no sense of humor.

It’s a dark place, the land of “nothing is funny.”

Most people don’t like it when I visit this ridiculous world of doom because I am not entertaining.  So the people who want nothing to do with any Heather except funny Heather, please move along, as there is nothing to see here.

This post is for me and for the people who feel completely helpless with this allergy i.e. feel like no one can help us.

Today, I am glad I can use my hands and type.  I couldn’t move either one of them since Sunday, so this is a nice change.  I was able to henpeck a few things here and there, but mostly, I could hardly make Alpha and Cracker’s school lunches, go to the bathroom, put my hair in a ponytail, brush my teeth, put the straw in a Capri Sun for Bambi, drive my car, sign my name on the ambulance release form…YUP.  YUP, YUP.

Ya heard me.  Ambulance release form.

Because I made a fool of myself swooning and dropping to the floor of my local library.  Here I am, limping from swollen feet, one hand immobile and wrapped, the other swollen like a blow-fish trying to hold a newly released novel… and I drop. It’s a long story and I don’t feel like telling it again.  Let’s just say that they blamed it on my allergy that no one seems to not be able to tell me anything about and gave me instructions to follow up with my doctor.

I am like, done.  Every other day I think I can do this.  I feel empowered, that I am going to be able to deal with this.  This nut I can crack.  I can’t EAT it, for the love of God, but I can try to crack it.  I can figure out things that I can eat and I can trust that a label is telling me the truth and I can find a few moments in my day when I am not taking care of the entire free WORLD but myself, but I am failing.  I am bad at it.  I am defeated.

FRICKEN’ CRY BABY.

I have wads of kleenex around my keyboard because I was just blubbering like a baby to try to call Chicagoland allergy doctor’s offices to see if they know anything about a sulfite allergy.  The problem is that I just can’t seem to get past the uncaring, bitchy, rude and uninterested, crass, annoyed and unfeeling people that answer the phone.   I don’t need to here one more person making me feel like shit.  I want no more long pauses after I state my case and then a very unexcited, “hold please.”  (And I KNOW they are doing this)

Annoyed, "WTF are you talking about and you are bothering me" eye-roll.

"What the hell is a sulfite."

I get that no one knows what this is.  I understand that I need to breathe and smile at every eye-rolling waitress when I divulge my true food allergy doesn’t contain the words “gluten” or “peanut.” I understand that no one has heard of this or doesn’t know what the hell it is.  I GET IT.  But, unfortunately, I am LIVING it and if people think it’s a hard pill to swallow, imagine me actually having to swallow the pill every day.

I call allergists offices to see if I can possibly find someone with a heart to inquire with a doctor if they have ever heard of a sulfite allergy.  Is it something that they can treat?   Do they know of someone that might know someone that might have any kind of clue as to what this is?  Because I can say, with all the determination that I can muster, this is ruining my life.  Can they help me with that?  Anyone?   Anyone?

KNOCK IT OFF

I will now leap off this pity party of a soap box.  I have a lot of blogging to catch up on.  I will remove my sense of humor hat that is crushed under my shoe and put it back on.  I will try to regain my vigilance in helping myself and others through this horrible disability that we have to live with and so that we can move on.

But I have to put my mark out in the world for all 4 people who will read this and say that I know what it’s like to not be heard, to have no one to listen to you and to not be understood.  Life is swirling around all of us with everyone living theirs so I guess the best thing we can do is hug ourselves and try to protect ourselves the best we can.

This is a society that doesn’t know the dangers of sulfites or what they are probably doing to them and their children.  I mean Jimminy Crickets, do you know how annoying it is to type the word sulfite all day and spell checker has to point out that it doesn’t even know what the hell it is?  My screen is constantly aglow with squiggly angry red lines!

OK, so back to work.  We have holiday parties coming up that we need to chat about and prepare for and more food options and recipes to find.  We need some serious “turn-this-frown-upside-down” action around here STAT.  So let me end this post on a high note with a food allergy joke.  I am giving credit to another blogger that I lifted this from because I thought it was cute and I like that they were trying to find some humor from the insanity so here is her link

Q) Did you hear about the Frenchman who could only count to seven?
A) He had a huit allergy.

Onward and upward.

XO

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13
Aug
10

sulfites in anesthesia. fact.


Attention K-Mart shoppers:  Hans has left the building.  Or as my friend Elliot stated on Facebook the other day, “look ma…no Hans!”

Yesterday I went under the knife and had a disgusting neck mass scooped out like a melon ball.  YAY ME!

It was a class act affair and Skokie Hospital totally rocks.  Very impressed with the whole scene.  I was worried of course, being a flamboyantly out of control drama queen, but I was mostly worried about the anesthesia and what affects it would have on me.  Specifically because I have heard that there are sulfites in a lot of them.  So when it came time to get to pre-op, I was chomping at the bit to have the consult with the drug peeps.  I told them about my allergy.  Skokie is a big teaching hospital so the resident who was assisting with the anesthesia (thank goodness for the ctrl+V button on my keyboard, that word is hard to spell) has never heard of it.  I felt all very puffed up and proud like a peacock to be a a part of her learning something new that day.  And I loved her because she said that even though my pre-op sarcastic wit was adorable and funny, she thought I needed a “little something” to calm me down.  I love her.  They were very cautious and did a lot of research in order to find the correct drug to administer.

Unfortunately, they had to wake me up on the middle of my surgery because apparently I was acting like Kung Fu Panda.  I think they were being nice but they did say that it was a good thing my hands were tied down so I couldn’t follow through on my karate chops.  It seems I was “slightly agitated” and *disinhibited during the beginning of the surgery.  And as my anesthesiologist/girlfriend stated, ” Well, Mrs. Moran, I think it’s just a good thing you have a kind and patient surgeon.”  Holy Hell, what did I DO?  After that I was in this strange state of half alive, have out of it.  I didn’t feel pain, but I could feel the tugging of the sewing.  I could hear conversations about someone’s kid playing little league and someone singing Cream’s Sunshine of your love.  A song I will always now equate to someone stabbing me in my neck, thankyouverymuch.  I also heard the resident who was sewing me up asking the doctor (after he said, oops) “um, Doc? how do I fix this?”  And the Surgeon saying..”Uh, it’ll be fine.  Just leave it.  Throw some tape on it. ”   HAYYYYY-YAH!

I KARATE CHOP YOU!

Seriously, the team was incredible and I would recommend my surgeon and that hospital anyone.

About the drugs.  When I came to my senses, I tried to ask one of my look alike nurses, Peg, June, ChristyMargaret,joanblahblahdrugsthatmakemehappyhmmmmmm

Anyway.  I asked for the list of meds that they administered to me and wouldn’t you know… not one of those 15 blurry nurses could give me an answer. I am going to call medical records and get it from them.  I think it’s really important to know for future reference.

I do know that when I recently had a kidney infection, before I found out about my allergy, my first antibiotic was not working so my old doctor gave me one called Bactrim.  It was BAD.  I reacted horribly to it, like I do with z-pac.  Of course I was getting the severest of the symptoms that I usually get when running into sulfites but I didn’t know it yet.  When I told my dr, he said to make sure to add it to my medicine allergy list.  When I was pre-op yesterday and telling one of the nirses about the sulfite allergy and my bactrim sensitivity, she said that it is really high in sulfites and I was inpressed that she knew that.

Here is a link to some poor victims who share bad bactrim tales  http://www.medications.com/effect/view/22714

THE DOLLS, THE PILLS, THE BOOZE

Well, this isn’t about booze, but I couldn’t resist the movie quote.  And you know how I feel about booze.

Other drugs to watch out for…

Tylenol with Codeine a.k.a Tynenol 3 or 4.   Here are the ingredients:

TYLENOL® with Codeine No. 3 contains powdered cellulose, magnesium stearate, sodium metabisulfite†, pregelatinized starch (corn), and modified starch (corn).

TYLENOL® with Codeine No. 4 contains powdered cellulose, magnesium stearate, sodium metabisulfite†, pregelatinized starch (corn), and corn starch

Whoops-a-daisy..don’t take those!

Here is another list that I found of Medications with sulfites       source

Bronchodilator solutions for asthma

  • Adrenalin chloride 1:1000 concentration
  • Bronkosol
  • Isuprel hydrochloride solution

Topical eye drops

  • Pred-Mild
  • Pred-Forte
  • Sulfacetamide
  • Prednisol
  • dexamethasone)

Injectable medications

  • Amikacin
  • Betamethasone phosphate (Celestone)
  • Chloropromazine (Thorazine)
  • Dexamethasone phosphate (Decadron)
  • Dopamine
  • Epinephrine (Adrenaline, Ana-Kit, Epi-Pen)
  • Garamycin
  • Gentamycin
  • Isoetharine HCl
  • Isoproterenol (injectable)
  • Hydrocortisone (injectable)
  • Lidocaine with epinephrine (Xylocaine)
  • Meperidine (Demerol)
  • Metarminol
  • Norepinephrine (Levophed)
  • Procaine (Novocaine)
  • Prochloroperazine (Compazine)
  • Promethazine (Phenergan)
  • Solutions for total parenteral nutrition and dialysis
  • Tobramycin

Finally, I have been wanting to talk to Dr. Mike and perhaps get a script for an epi pen, not really for my sulfite allergies, but for something else.  My reactions to apples and peaches, even organic and peeled, seem to be getting worse.  I had heard that there were sulfites in Epi pens.  They are indeed OK for us to you…here is documentation

http://allergies.about.com/od/fa1/f/sulfiteepipen.htm

So that’s all I have for now.  The Hans crater is sore and I am getting pooped out.  Next blog coming later is about where to find good organic meats and how I learned some disturbing news regarding sulfite spraying on dole bananas and some other fruits that I thought were safe.

Over and out, captain.

P.S.

*disinhibited definition, according to Wikipedia

Disinhibition is a term in psychology used to describe a lack of restraint manifested in several ways, including disregard for social conventions, impulsivity, and poor risk assessment. Disinhibition affects motor, instinctual, emotional, cognitive and perceptual aspects with signs and symptoms similar to the diagnostic criteria for mania. Hypersexuality, hyperphagia, and aggressive outbursts are indicative of disinhibited instinctual drives.[1]

Let’s see a round of hands for everyone who agrees that I hope I never see any of those people who were in that room ever again.  Especially if my disinhibition turned hypersexual in any manner.

P.S.S.

I love you.  Oooh Oooh Oooh.
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08
Aug
10

NO-HO COCONUTS!


Hello lovelies…

This is a friendly service reminder to READ ALL LABELS.  Even on things you think are ok.  I love those Odwalla juices and can have most of them, if they don’t have garlic.  I picked up a gallon of the Mango Smoothie and pretty much downed the whole thing last Weds.  By 2am, I elevated in my bed screaming in excruciating pain.  My left shoulder was horribly swollen and I couldn’t move it an inch without yelping and the fingertips on my right hand were swollen, hot, inflamed and itchy.   HELLO.  Looked on the label of the juice and there amid all the good stuff I could eat was the word, “COCONUT.”  Eek.

I am finally feeling better, it took a good three days to get it out of my system but it was a bit traumatizing.  I think now that I have cleaned my body of everything,  my reactions are a lot stronger.  That, or the have jsut really excalated now.  Anyway, I am keeping a list of all the big allergens and I suggest all you sufferers do the same.

Hans, The Neck Mass

So I have this bump on my neck and I have had it for about 8 months.  I have named him “Hans” It’s getting bigger so a nice surgeon is going to knock me out in a few days to get it the hell out of my body.  Is it a cyst, a mass, a wonky node and tumor that is slowly crawling up in my brain and making me act blonder than I am?  Who knows…we will see.  I just don’t want to look at it.  I had a friend who used to have fatty deposit things removed from his body and he would specifically ask the doctor to put them in a little vial so he could take them home and gross me out.  I love that guy.  I am sure everything will be fine.  HOWEVER,   If one more person tells me not to freak out and everything will be fine, I am going to smack them and tell them that when they have large bump in the back of their neck, then can do the same.  Let me freak out.  It’s my nature.  So wish me luck on my little surgical adventure and let’s hope I get some good drugs for the pain.  YEEE HHAAAAAA!

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Heather Moran

Crazed sulfite-free woman.

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