Posts Tagged ‘rheumatoid arthritis

17
Oct
11

She Can Lift Her Head Off The Table.


Now that I have then strength to lift my head off the table, it’s time for me to fill you in on my sulfite-free FAD DIET progress.

Official status report: SUPERFREAKINAWESOME.

ok, so I have to admit, the first three days was like walking around carrying 3 bloated elephants wearing fat suits.  BRU-to the-TAL.  But I eventually got the rhythm of everything and I.FEEL.FANTASTIC.

Mostly, probably, because I am clean.  Not sulfites or booze for 8 days.  There is not one sulfite iota in me.  (Lie.  Our body makes natural sulfites.)  But I am not intentionally putting anything in me and I feel like I could fly.  (Apparently, there may be some traces of college-age LCD.)

Down 13 pounds, too.

I did have a major RA flare-up for 5 of those days, but that is because I was late taking my shot, thinking that I might not need it anymore.  Sometimes, I am a ridiculous person.

So, unnamed fad diet working.  I am not really hungry on it, that is the trick with it, I think.  But mostly, I see the others around me not GAINING and I think that is the whole key to this thing. Whatever, still not endorsing.  Still not divulging.  It’s really no big deal because the point is that I am clean and losing weight.  Once I get through this little test of endurance, I will be back to clean living and hope I can naturally and slowly lose the rest of the weight.  This, so far, is a nice springboard.  BOINGGGGGG………

I think one of the reasons that I am doing too well on it is because I am used to being already a bit deprived having a sulfite allergy.  I am used to having to make my food, even when I am really hungry.  It feels good again to know what I am putting in my mouth is good for me.

I have some recipes that I am going to pop up for everyone and some of them are quite delicious.  I just had me some chili that was scrumptious!!  Lots of chicken, lots of fish, ground turkey, some meat…yummy veggies and fruits.

Pros: feeling great, losing weight, not hungry, great feeling of accomplishment

Cons: I miss booze.

Come back later and check out some of the recipes.  I am going to type some up now.   Bon Appétit, sulfite-nots!

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16
Aug
11

The Sulfite Addiction. And other rants.



It’s like crack.

This addiction to sulfites.

It’s making me an insane woman.  I mean, MORE insane.

I almost long for the days when I would get a reaction that would disable me.  Then I would be forced to avoid everything I can’t eat like the plague.  Now it takes a really large amount of sulfites to effect my RA on the OUTSIDE.  So I cheat and I slowly feel like crapola.

Here is my sulfite haiku:

food with sulfites

shoved in mouth

walk with limp

***********************************

Seriously, who is with me here?  It’s like any diet.  I do okay in the morning.   I am a spitfire of self-control and will power.  But then my light starts to flicker just the ttttiiiiiiiiiiiinneeeesssttt bit near lunch time when I have to make the kids’ food.  So I make the grilled cheese.  My picky children (say outloud with whiniest voice possible) “…need the crusts off…..ppllleeaasee Mommy?”

NO NO NO because MOMMY WILL EAT THE CRUSTS.  THE LITTLE CHEESE-FILLED PIECES OF CRUSTS, WHERE THE CHEESE OOZES OUT THE SIDES.

Cheese that used to render me a virtual paraplegic from the neck down before my meds came into my life.

Now, it’s a slow poisoning.  It’s a gradual bloat all day. By dinner, I am practically shoving olives, laced with vinegar, garlic and jelly in my mouth. I look in the mirror before bed, and I stare at the moon pie face.  And I feel nothing but guilt for sneaking grilled cheese crusties into my mouth…or a few left over nuggets…

It’s like a drug addiction. True dat.

I NEVER considered myself having a food addiction.  Facebook?  Hello, obvious.  Booze?  Sure, why not.  Sex?  Thor wishes.  But, food has never been a really big thing for me.  I don’t care where or what I eat, as long as my tummy doesn’t hurt and I get rid of my low blood sugar grumpies.  But I am addicted to the sulfite DRUGS that are put in our food to keep them from getting moldy.

I have been thinking about trying this HcG diet, but because of some of my medical problems, I am weary.  and SELF! Wake up!  (Smacking myself on the head.)  I don’t need to do anything but eat clean again.

Why is it so hard? whywhywhywhywhy

Summer’s End and a beaten shell of a woman.

I am so tired.  I am a broken woman from this summer.  Done.  Flip me over, take me off the grill, I have had it.  I love my babies but I long for routine, organization, a clean house, a moment to cry and minute to go to the bathroom without someone walking in on me with the DVD case, asking me to put on a movie.  THEY NEED TO GO BACK TO SCHOOL.

There.  I said it.  Hey, lady..you…over there, PerfectMom…shaking your head. Stop being horrified.  I said what most mothers are thinking right now, but are too worried about being labeled as a bad mother to admit it.

I think some people who don’t get it or don’t want to understand might look at me and say:  “Oh.  Boo.  Poor shell of a woman.  I feel so bad for you that you got to stay home and go to the pool 3 days a week and go to Great America and wear your jammies until 10am and not be in an office.”

And I do love my job.

Correction: Job(S).

Besides the fact that I run a small Entertainment PR firm from my office, I perform as a vocalist and I have over 15 vocal students, I also “work from home” as a mommy and I have to say that my office is not THAT different from other offices where I have worked.  Except:

  • The water cooler is fulled with Cherry Capri Suns
  • My bosses are all under the ages of 12 and they are also my clients.  They can also be intimidating.
  • All  traveling occurs in a dying minivan with little people whipping skittles at my head, yelling at me to turn up the volume on the movie
  • My printer is jammed with 147 print-outs of Hello Kitty coloring pages
  • My work luncheons occur at the snack area of Target
  • All office supplies are made by Crayola
  • I network at the pool
  • The conference room apparently has a toilet in it.

Perks:  Bambi makes me beautiful pictures to decorate my office and helps oversee the “small neighborhood children running all over my house” department. 

Cracker lightens up the office atmosphere with giggles, dancing, messing up every room 12 minutes after I have cleaned it and changing her outfits multiple times a day.

  Alpha is definitely Head of Security, training on the Xbox and learning how to whack people with lacrosse sticks. 

We can’t forget the independent contractors:  (Or sometimes referred to as the workers in the “small neighborhood children running all over my house” department.) The multitudes of little neighborhood children (who I love).  These little cutie pies are constantly stopping in the house for little meetings.  The topics of these are usually strategizing about pulling out every toy in the house and throwing it on the floor, presentations painted on rugs with nail polish and snack breaks every 15 minutes to eat all the food we have in the house.  (These are, of course, supported practices, as most of MY little people in this office are doing them same thing over at their offices.)

Thor always wins employee of the day for coming home from his bigger office job and helps me sort out this hot mess over here.

  I love my co-workers.

  And after my shift is over, when hopefully the house is straightened, the dishes are  in the washer, lights are off and doors are locked ,Thor and I can crawl into bed.

It’s a charming scenario: me, happily sipping my chardonnay and Thor, quietly wanting to kill me for making him watch Toddlers and Tiaras.  No one said life is easy, but dayum, it sure is good.

Happy Anniversary Simple Dude!  I am a proud Simpleton.

26
Jul
11

And She is Alive….


….Hello…hello??? (Tap tap tap) Is this thing on????

(Such a stupid corny joke but I could not stop myself.)

I thought it might be time for an update…

Hello lovelies!

I have been under a rock for awhile.  Mainly because I didn’t know what to do about this blog.  Massive avoidance.

At first I was like, OMG!  I don’t have a sulfite allergy!  I have Rheumatoid Arthritis.  YAY!   Wait.  What?

Then I was like, oh.  That sucks.  Little did I know that I have BOTH.  Or more properly, I probably have a side effect or side disorder of this allergy that compliments the RA.  No one has been able to tell me that for sure.  My RA Doc insists that the sulfite thing is not true.  My lovable Dr. Unger is supportive.  I pick number #2.

But I thought all my worries were over with meds.  So what does one do?  Eat cheese.

You see, I started Enbrel and it sort of changed my life.  My RA has gone pretty much into remission.  (Or so I thought.)  I was actually able to EAT things again and still walk after 4 hours.

So then I was like, OMG.  The cure for a sulfite allergy is biologics!

Wait the the free world hears about this!!

I felt GREAT.  I was running up stairs.  I was eating garlic and onions!  I was chasing my kids and drinking yummy wine and….

was also about to stroke out. Or at least, paving the way to an eventual stroke or heart attack.

All of the sudden my BP was going nuts.  Now, granted I have all my kids home this summer and I am literally exhausted from entertaining them.  But I was starting to seriously bloat.  Like,

BLOAT

In my face and my ankles and my stomach…and of course, I always would get the notion to get it checked out on the weekends or Weds. when my awesome and lovable DR. is off.  Seriously.  It’s so Murphy’s Law.  He office is also far and going to see him takes about 5 hours out of my day.  I am living in the land of teaching, playdates, pools and Great America so instead of taking a day to myself, I just put it off.

In less than three months, I have gained 26 pounds.  HELLO LADY!

Truth.

My crazy woman self -diagnosing started kicking in.  I figured out that I was eating the sulfites and my body didn’t know what to DO with that information.   My body was like,” shit, wait, somethings not right…CURSES TO YOU, ENBREL, we can’t make her joints swell!  Let’s….um….I don’t know…spike her blood pressure….kick her kidneys so she doesn’t pee!…see how she likes that!”  It seemed that sometimes TMI I was having trouble peeing and when that happened, by BP would jump up.  Crazy shenanigans, I tell you.

I could say this: Thor is my witness that this is not just me eating 5 Buena Beefs with a side of cheese fries a day.  I am simply not eating enough to pack on that weight. Or am I?  I mean, REALLY.  I AM NOT ONE OF THOSE OBESE WOMEN CRYING ON JENNY JONES THAT I DON’T EAT ANYTHING!!!  (or wait, am I?)  Seriously, dude.  That did NOT take long for me to gain that. Renee Zellwiger would be very impressed.  But, seriously, the swell reaction is intense.  You can see my face a couple of hours after I eat something and I look like

THIS

So finally one day, my BP was high and it was stuck up there for a few days, I felt like crap and it was of course a WEDNESDAY, so I called my old dr around here who did me so wrong for years…so, so wrong…but they were actually civil and gave me a diuretic.  Which I just started.  Now I am tired, dizzy and I pee.  All. The. Time.  And I can’t go in the sun.  But I have to.  Because all I do is go to the pool with my kids.  So now I may get skin cancer. And pass out and drown in the water.  Or something.  Stay tuned.

Look.  I gained this weight because I slowly started to eat crap again.  Do I think I am carrying 25 pounds of water weight?  Puh-leeze.  My blood pressure is also probably up again because I am a fat ass.  Werd.  But I need to get back on track here.  Especially since Thor is going to be 40 in 9 months so he is starting a regimen to lose 40 pounds by 40.  And he will lose it all quickly and I will want to stab him in his sleep.  So let’s do this bitch. I will NOT have him leave me in the dust and I WILL NOT have the man who does not blog, all of the sudden blog MORE that me.  GAME ON, MISTER.

Hopefully this will help.  Time will tell.  For  now, I have to say, I have to go back to clean eating.

GUEST ARTIST COMING SOON:

One of my dearest friends in the world, one of my BFF’s from high school, let’s call her…THE VOICE (lol she will appreciate that inside joke) is going to go on a little clean living journey with me.  So starts the trek.  I promise you a blogging world filled with nasty before and after pictures, 2 dorks in the kitchen, some possible sulfite-free  wine-induced blogging and most probably some bloody tears. She is really organized, stays on my ass and kicks it repeatedly, so there should be more follow through on this than the last little project of cooking and blogging that I started on here.

But I have to be honest with myself .

Dear Self,

Just because I have found a blessed band-aid for my disease AT THE MOMENT (these biologic meds have a tendency to stop working after awhile and sometimes riddle you with cancer.  Rah!) I know that I need to go back to staying away from sulfites.

Love,

Myself

Little sulfitenots, sorry I have been on a fat collecting, Brimstone Demon-filled vacation, but I am back now and ready to party, sulfite-free style.

WOOT!

04
Feb
11

Pump Fake (quite literally)


Today was my training with Thor for my first Embrel injection.

What we learned today:  I am a suckass wimp.

And so is Thor.

I had to go in to get my first shot shot today of this new biologic drug that is supposed to not only make me feel better, but basically make me symptom-free.  Which is just about perfect timing as yesterday I was calling friends to see if anyone had a cane lying around that I could borrow to walk around.  Jeez, Louise.

So we get there and because insurance is so annoying, they had to give me a sample.  They get me all prepped, (Thor was supposed to give it to me but he “assured” me that it was probably best and easier if I do it a.k.a.  Thor=pussy.)  Alright, so he’s not a pussy, he is very sweet,.  I am just trying to make myself  look better.

So I have to drop my pants

and get up on the table with Thor and Dr. Rheumy and Nurse Nice.  (She is very nice and helpful.)  Dropping trough in front of strangers is never fun.  And I wished that I hadn’t worn “that” underwear.

My rheumy is french and rather, well, hot.  And she is a very, very smart blonde and I have a feeling she can also really cook.  So she is trying to instruct me how to do it and I have to take the alcohol swab and rub it in a certain direction and then I do it but I bump my hand on it and I have “contaminated” the area we has just swabbed so we have to re-swab and well, there were a lot of disappointed french sounds being uttered but she was being as patient as she could be with a blonde trying to give herself her first injection.

And do I finally and do and it was cake! So Easy!  Didn’t hurt in the least!

Cause it was defective.

Total dud.  Absolute pump fake.  HEY!  Sue that pharmaceutical salesmen and let me kick his ass because now we have to wait another 10 minutes for the next sample to cool down and do shove it in my other thigh.

I put my pants back on and Thor and I stared at each other for another 10 minutes.

I know it worked the second time cause it freaken hurt.  And it takes about 15 seconds for it to all get in there so yeah, ow.  But I am a warrior and I plowed through.

“Oh Embrel, course through my body, heal all wounds and swollen joints, help me walk pup the stairs without tripping and falling into the wall.”
So far, so good.  I seem a bit more tired than usual, but I am not bleeding about the eyes and ears and that’s all that really matters.  The only really important thing is that I cannot get sick.  Really.  Like, don’t sneeze near me or touch me if you have an infection or rub on me if you are pussy or leaking anything.  And really just don’t ever really rub on me in any situation.

I was worried because I have heard that the quick pen version of how my meds are injected has preservatives in it but so far, so good.  I have read where some sulfitenots use the version of the drug where they have to mix it themselves and shoot it that way and that is just a little bit too Sid and Nancy for me, so I hope this one works…

I still have to stay on my steroids for now, and i think they mask a lot of my sulfite reactions, so I will continue to gain weight as I have been cheating and sneaking some little things here and there.  Like blonde oreos…cause…well…you know…

Happy weekend to all!
XO

Heather

MyFreeCopyright.com Registered & Protected

31
Jan
11

When in doubt, post kale.


Well, hello there.

I have been an absentee blogger.  Bad blogger, BAD BLOGGER.

I have mostly been trying to wrap my head around this whole business of my rheumatoid arthritis, which has hit me like a mack truck.  And, what to do with this blog.  LOL

I mean, I definitely have an allergy to sulfites that makes my RA worse.  But this site seems to be geared towards sulfitenots and lately all I really want to focus in is the RA crap and I don’t want to bore anyone.  More than I usually do.

So I thought, I would just re-invent this blog to meet both needs.  And the RA peeps are gonna have to deal with the sulfite stuff and the sulfitenots are going to have to deal with the RA crap.

And the sharks and the jets are gonna have to play nice at the park.

I found a recipe that involves kale because it’s sulfite-free and the antioxidants are huge in helping to fight RA.  Will post it in the recipe section.

I feel like I have gotten into a pretty good routine with my no-sulfite eating lately.  I definitely am not getting the major attacks as I used to, partly because I know how to check everything now and also, friends and family are being really supportive.  Everyone has been really conscious and caring about what I can and cannot eat and it has made a huge difference.

There is still the pink elephant in the room question looming around all the time though:

Do I truly have this allergy or is it just my RA?

My Rheumatologist kind of doesn’t believe me.  LOL  Like, I love her, she is so cool and doing an amazing job with me, but when I bring it up, she looks like this

And in her cute french accent, she looks at me with a slide glance and says, “I don’t know about all of that.”

but I DO!  I DO know!  I eat something and 4 hours later, something bad happens.  OK, so there is no test.  But that should be enough, right?

We need to find someone, somewhere, some dr or allergist who will hurry up and make a test so we can all take it!

Let’s go one step further, people!  We need our own ribbon!  But instead of it being pink or red, white and blue, or yellow, maybe it should look like this:

Wear it proudly, sulfitenots!  (Don’t stab yourself putting it on.)

 

ok, I have to run.  But I also wanted to tell you that I got a Cuisinart breadmaker for my birthday and it’s AH.MAY.ZING.

Before I got it, I had bread pimps out there in the world for me…minions who would grab the Breadsmith bread that I can eat that you can only get Whole Foods or stores that are not near me and I would have to have them store it in their freezers.  But now I can make my own and it’s sooooo easy!  Who would have thunk that this blonde can make hot, succulent, steamy rosemary bread?

That’s it.  Have to go make a batch right now.

Huge snow storm coming to Chicagoland tomorrow…Stay warm!

 

 




Heather Moran

Crazed sulfite-free woman.

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