Posts Tagged ‘sulfite allergy blog

13
Oct
10

Raise the towel or throw in the towel?


…and now here I sit with no sense of humor.

It’s a dark place, the land of “nothing is funny.”

Most people don’t like it when I visit this ridiculous world of doom because I am not entertaining.  So the people who want nothing to do with any Heather except funny Heather, please move along, as there is nothing to see here.

This post is for me and for the people who feel completely helpless with this allergy i.e. feel like no one can help us.

Today, I am glad I can use my hands and type.  I couldn’t move either one of them since Sunday, so this is a nice change.  I was able to henpeck a few things here and there, but mostly, I could hardly make Alpha and Cracker’s school lunches, go to the bathroom, put my hair in a ponytail, brush my teeth, put the straw in a Capri Sun for Bambi, drive my car, sign my name on the ambulance release form…YUP.  YUP, YUP.

Ya heard me.  Ambulance release form.

Because I made a fool of myself swooning and dropping to the floor of my local library.  Here I am, limping from swollen feet, one hand immobile and wrapped, the other swollen like a blow-fish trying to hold a newly released novel… and I drop. It’s a long story and I don’t feel like telling it again.  Let’s just say that they blamed it on my allergy that no one seems to not be able to tell me anything about and gave me instructions to follow up with my doctor.

I am like, done.  Every other day I think I can do this.  I feel empowered, that I am going to be able to deal with this.  This nut I can crack.  I can’t EAT it, for the love of God, but I can try to crack it.  I can figure out things that I can eat and I can trust that a label is telling me the truth and I can find a few moments in my day when I am not taking care of the entire free WORLD but myself, but I am failing.  I am bad at it.  I am defeated.

FRICKEN’ CRY BABY.

I have wads of kleenex around my keyboard because I was just blubbering like a baby to try to call Chicagoland allergy doctor’s offices to see if they know anything about a sulfite allergy.  The problem is that I just can’t seem to get past the uncaring, bitchy, rude and uninterested, crass, annoyed and unfeeling people that answer the phone.   I don’t need to here one more person making me feel like shit.  I want no more long pauses after I state my case and then a very unexcited, “hold please.”  (And I KNOW they are doing this)

Annoyed, "WTF are you talking about and you are bothering me" eye-roll.

"What the hell is a sulfite."

I get that no one knows what this is.  I understand that I need to breathe and smile at every eye-rolling waitress when I divulge my true food allergy doesn’t contain the words “gluten” or “peanut.” I understand that no one has heard of this or doesn’t know what the hell it is.  I GET IT.  But, unfortunately, I am LIVING it and if people think it’s a hard pill to swallow, imagine me actually having to swallow the pill every day.

I call allergists offices to see if I can possibly find someone with a heart to inquire with a doctor if they have ever heard of a sulfite allergy.  Is it something that they can treat?   Do they know of someone that might know someone that might have any kind of clue as to what this is?  Because I can say, with all the determination that I can muster, this is ruining my life.  Can they help me with that?  Anyone?   Anyone?

KNOCK IT OFF

I will now leap off this pity party of a soap box.  I have a lot of blogging to catch up on.  I will remove my sense of humor hat that is crushed under my shoe and put it back on.  I will try to regain my vigilance in helping myself and others through this horrible disability that we have to live with and so that we can move on.

But I have to put my mark out in the world for all 4 people who will read this and say that I know what it’s like to not be heard, to have no one to listen to you and to not be understood.  Life is swirling around all of us with everyone living theirs so I guess the best thing we can do is hug ourselves and try to protect ourselves the best we can.

This is a society that doesn’t know the dangers of sulfites or what they are probably doing to them and their children.  I mean Jimminy Crickets, do you know how annoying it is to type the word sulfite all day and spell checker has to point out that it doesn’t even know what the hell it is?  My screen is constantly aglow with squiggly angry red lines!

OK, so back to work.  We have holiday parties coming up that we need to chat about and prepare for and more food options and recipes to find.  We need some serious “turn-this-frown-upside-down” action around here STAT.  So let me end this post on a high note with a food allergy joke.  I am giving credit to another blogger that I lifted this from because I thought it was cute and I like that they were trying to find some humor from the insanity so here is her link

Q) Did you hear about the Frenchman who could only count to seven?
A) He had a huit allergy.

Onward and upward.

XO

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Heather Moran

Crazed sulfite-free woman.

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